NMO Patient Stories

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Living in limbo…MS or NMO?

Hi everyone my name is Micky i am a 38 year old father of 2,living in Norway. 1 My story began in 2007 when i lost the feeling in my left thigh. It was not at all painful so i … Continue reading →

Life Sucks but you got to laugh!!

A strange title you may think, but it is true. Life has thrown you a bad hand, and it does suck, but you have to ensure you keep smiling and laughing!! Just think for any disabled or able bodied person … Continue reading →

NMO…My Journey

My life changed on March 21st 2011 when this horrific disease attacked me. I had just come back from the west coast of Florida for Spring Break with my family when I noticed I was having some back pain. I … Continue reading →

Gary’s 30 year Journey

When Gary and I got married in 1983, we did not know that a disease was looming in his body. On Feb 2, 1984, Gary was kicked in the head by a cow, as he worked as a cowboy on … Continue reading →

And give me the wisdom…

My name is Francisco Garcia. I wanted to share my story. I am really bad with dates. So, some of the information may not be chronologically perfect, but my feelings and experiences are engraved in my memories like it was … Continue reading →

The Life of a Twenty-Something Living with NMO

December 2004- I was a typical 22 year old college student, getting ready for final exams and anticipating heading home for the holiday season to spend time with my family and friends. I was feeling a bit under the weather, … Continue reading →

From 10 hours to 20 minutes

In October of 2010, just weeks shy of my 40th birthday I rode a 115 mile bike ride in the Nevada desert. It was the most extraordinary physical thing I have ever done, and at the finish line I scared … Continue reading →

Alicia Pelc

Hello my name is Cathy, and I have a 9yr old daughter named Alicia whom was just recently diagnosed with NMO in Nov of 2011. We live here in Colorado, and to my knowledge this is a rare disease. It … Continue reading →

Dionne Cooper Hairstylist/CNA with NMO

Hi, my name is Dionne Cooper i am a Hairstylist/CNA. I was a healthy 38 year old woman until March 2009, I was diagnosed in September 2009 with NMO. I had just got a form working at a local Hospitsl … Continue reading →

My Journey to My NMO Diagnosis

My NMO experience is minimal as I was just diagnosed on June 22, 2010. I was originally diagnosed with Multiple Sclerosis (MS) on October 29, 2009. I started Copaxone on November 7, 2009 to help slow the progression of MS. … Continue reading →

Better days ahead… a day in the life of Jesus & Maria

Better days ahead… “Because I am still in love with you… I want to see you dance again…” Today I danced with Maria… ! Just the way it is… once you realize your new way of life there is no … Continue reading →

Kenneth Clarke

In 1975 I was a 41 year old career oriented business man with athletic skills and aggressive personal goals. Until, one Sunday morning following an active day of skiing I awoke with a nagging pain in my left eye and … Continue reading →

Martin’s Story

One night my husband went to bed a healthy 41 year old then found himself next morning in intensive care paralyzed from the jaw down unable to speak or breathe for himself. Three weeks later we had a diagnosis – … Continue reading →

My Journey MS/NMO

I was diagnosed with Pseudo tumor in 2003 by one doc and another said MS. I had optic neuritis in right eye and spots in the brain matter. Neg spinal fluid test for MS. A shunt was placed for draining … Continue reading →

A Four Year Old with Devics

Hi I am Suzie Mum to Niamh. We are based in the UK. Niamh was five years old a few days ago and spent her birthday in Hospital. Niamh was a pretty normal child until last November 2005. She had … Continue reading →