NMO Resources
180 Medical Scholarship
http://www.180medical.com/scholarships
180 Medical is honored to have started a scholarship program to help those with transverse myelitis, acute disseminated encephalomyelitis, neuromyelitis optica, spina bifida and spinal cord injuries.
Realizing the financial burdens that exist for many of these families, we’ve developed the 180 Medical Scholarship Program to honor these young adults who pursue goals of higher education.
Other Patient Organizations
Accelerated Cure Project
300 Fifth Avenue
Waltham, MA 02451
Tel: 781-487-0008
Fax: 781-487-0009
Email: info-web0508@acceleratedcure.org
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Advocacy for Patients with Chronic Illness, Inc.
Jennifer C. Jaff, Executive Director
18 Timberline Drive
Farmington, CT 06032
Tel: 860-674-1370
Fax: 860-674-1378
Email: patient_advocate@sbcglobal.net
Visit website
Campaign for Better Care
c/o National Partnership
1875 Connecticut Avenue, NW
Suite 650
Washington, DC 20009
Tel: 202-986-2600
Fax: 202-986-2539
Email: info@CampaignforBetterCare.org
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CoachArt
3303 Wilshire Boulevard
Suite 230
Los Angeles, CA 90010
Tel: 213-736-2850
Fax: 213-736-2851
Visit website
Devic’s Disease Blogspot
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Spectrum
An online NMO community
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Mayo Clinic
Minnesota – Rochester
200 First St. S.W.
Rochester, MN 55905
Tel: 507-284-2511
Fax: 507-284-0161
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Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
Tel: 954-776-6805 888-MSFOCUS (673-6287)
Fax: 954-351-0630
Email: support@msfocus.org
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Multiple Sclerosis Trust
Neuromyelitis optica in the UK: a new service
Jon Revis, NMO Nurse Specialist
John Radcliffe Hospital, Oxford
The Myelin Project – USA
Candace Root, Executive Director
1400 Wallace Blvd, Sute 258
Amarillo, Texas 79106
Toll Free 800-869-3546
Tel: 806-356-4693
Fax: 806-356-4694
Email: candace.root@myelin.org
Visit website
Myelin Repair Foundation
18809 Cox Avenue
Suite 190
Saratoga, CA 95070
Tel: 408-871-2410 Fax: 408-871-2409
Email: info@myelinrepair.org
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National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Tel: 301-496-5248
Email: 2020@nei.nih.gov
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National Institute of Neurological Disorders and Stroke(NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: 800-352-9424
Email: braininfo@ninds.nih.gov
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National Organization for Rare
Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100
Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291
Email: orphan@rarediseases.org
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Office of Rare Diseases National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, Maryland 20892-7518
Tel: 301-402-4336
Fax: 301-480-9655
Email: ord@od.nih.gov
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Oxford University NMO Clinic Department of Clinical Neurology
John Radcliffe Hospital
Level 3, West Wing
Headington
Oxford OX3 9DU
UK
Tel: 01865 234461
Email:annaliza.rye@orh.nhs.uk
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PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141
Email: support@patientslikeme.com
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Pediatric NMO and Demyelinating Diseases Facebook Page
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Purling Dervish
SistaMoon Foundation for Devic’s Disease
Shelia Sheckles, Founder and CEO
Email: sistamoonfoundation@yahoo.com
Visit website
Transverse Myelitis Association
Sanford J. Siegel
President & Newsletter Editor
1787 Sutter Parkway
Powell, OH 43065-8806
Email: ssiegel@myelitis.org
Visit the TMA website
Visit the TMA Facebook
Visit the TMA Twitter
The Walton Centre for Neurology and Neurosurgery
NHS Trust
Lower Lane
Fazakerley
Liverpool
L9 7LJ
Tel: +0151 – 525 3611
Email: enquiries@thewaltoncentre.nhs.uk
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