var g_txt=[
{t:"Foundation breaks barriers to ",p:1,x:91,y:889,w:301,h:20},
{t:"help advance scientific research ",p:1,x:91,y:914,w:314,h:20},
{t:"for Neuromyelitis Optica (NMO) ",p:1,x:91,y:939,w:326,h:20},
{t:"Spectrum Disease. ",p:1,x:91,y:964,w:185,h:20},
{t:"Fostering scientific collaboration between ",p:1,x:91,y:1009,w:319,h:16},
{t:"research laboratories across the United ",p:1,x:91,y:1030,w:295,h:16},
{t:"States and Europe, The Guthy-Jackson ",p:1,x:91,y:1050,w:295,h:16},
{t:"Charitable Foundation (GJCF) established ",p:1,x:91,y:1071,w:321,h:16},
{t:"the first Neuromyelitis Optica (NMO) ",p:1,x:91,y:1092,w:290,h:16},
{t:"patient repository where people who have ",p:1,x:91,y:1113,w:318,h:16},
{t:"NMO can volunteer to donate their blood ",p:1,x:91,y:1134,w:315,h:16},
{t:"samples for ",p:1,x:266,y:1155,w:91,h:16},
{t:"scientific study.",p:1,x:266,y:1175,w:117,h:16},
{t:"The Guthy-Jackson ",p:1,x:266,y:1217,w:149,h:16},
{t:"Charitable ",p:1,x:266,y:1238,w:85,h:16},
{t:"Foundation ",p:1,x:266,y:1259,w:92,h:16},
{t:"Repository for ",p:1,x:266,y:1280,w:112,h:16},
{t:"NMO will be ",p:1,x:266,y:1300,w:102,h:16},
{t:"accessible to   ",p:1,x:266,y:1321,w:109,h:16},
{t:"researchers at ",p:1,x:266,y:1342,w:107,h:16},
{t:"funded institutions including the Mayo ",p:1,x:91,y:1363,w:296,h:16},
{t:"Clinic, Stanford University, the University ",p:1,x:91,y:1384,w:323,h:16},
{t:"of California, San Francisco, Johns ",p:1,x:91,y:1405,w:268,h:16},
{t:"Hopkins School of Medicine, The Scripps ",p:1,x:470,y:888,w:319,h:16},
{t:"Research Institute and Harvard University.  ",p:1,x:470,y:909,w:329,h:16},
{t:"This sharing of blood samples between ",p:1,x:470,y:950,w:297,h:16},
{t:"participating institutions will speed up the ",p:1,x:470,y:971,w:319,h:16},
{t:"research process by allowing scientists to ",p:1,x:470,y:992,w:314,h:16},
{t:"have access to samples to which they ",p:1,x:470,y:1013,w:283,h:16},
{t:"normally wouldn’t have access due to ",p:1,x:470,y:1034,w:288,h:16},
{t:"budget restrictions.        ",p:1,x:470,y:1055,w:181,h:16},
{t:"Partnering with the Accelerated Cure ",p:1,x:470,y:1096,w:282,h:16},
{t:"Project (ACP) in Boston, MA, and the ",p:1,x:470,y:1117,w:292,h:16},
{t:"University of Texas, SouthWestern ",p:1,x:470,y:1138,w:266,h:16},
{t:"Medical Center (UTSW) in Dallas, TX, the ",p:1,x:470,y:1159,w:329,h:16},
{t:"NMO Repository will exist as a project ",p:1,x:470,y:1180,w:299,h:16},
{t:"within the organizational structure of the ",p:1,x:470,y:1200,w:310,h:16},
{t:"ACP. The repository is based upon ",p:1,x:470,y:1221,w:264,h:16},
{t:"successful results of the Foundation’s ",p:1,x:470,y:1242,w:285,h:16},
{t:"initially funded ACP project dedicated to ",p:1,x:470,y:1263,w:311,h:16},
{t:"collecting and storing NMO patient ",p:1,x:470,y:1284,w:271,h:16},
{t:"samples.",p:1,x:470,y:1305,w:65,h:16},
{t:"In this new initiative, ACP will promote ",p:1,x:470,y:1346,w:304,h:16},
{t:"the continued enrollment of NMO subjects ",p:1,x:470,y:1367,w:327,h:16},
{t:"into the NMO Repository, and provide ",p:1,x:470,y:1388,w:294,h:16},
{t:"samples from the NMO Repository to ",p:1,x:470,y:1409,w:288,h:16},
{t:"qualified scientists whose proposed ",p:1,x:470,y:1430,w:270,h:16},
{t:"research will contribute to the diagnosis, ",p:1,x:852,y:888,w:308,h:16},
{t:"prevention, treatment, and/or cure of ",p:1,x:852,y:909,w:279,h:16},
{t:"NMO.  ",p:1,x:852,y:930,w:57,h:16},
{t:"Volunteers can enroll to donate their blood ",p:1,x:852,y:971,w:324,h:16},
{t:"samples with the ACP at their headquarters ",p:1,x:852,y:992,w:329,h:16},
{t:"in Boston, MA, one of their satellite ",p:1,x:852,y:1013,w:275,h:16},
{t:"repository sites, or by accepting an ",p:1,x:852,y:1034,w:266,h:16},
{t:"enrollment visit from the UTSW nurse.",p:1,x:852,y:1054,w:294,h:16},
{t:"Researchers who want to request samples ",p:1,x:852,y:1096,w:316,h:16},
{t:"are asked to submit a written proposal ",p:1,x:852,y:1117,w:290,h:16},
{t:"using the ACP Samples Request Form.  ",p:1,x:852,y:1138,w:300,h:16},
{t:"The proposal is reviewed at the ACP and ",p:1,x:852,y:1159,w:310,h:16},
{t:"ultimately submitted to an oversight ",p:1,x:852,y:1179,w:275,h:16},
{t:"committee for review.  Researchers are ",p:1,x:852,y:1200,w:297,h:16},
{t:"encouraged to make application ",p:1,x:852,y:1221,w:243,h:16},
{t:"immediately upon discernment of need.  A ",p:1,x:852,y:1242,w:322,h:16},
{t:"response will be forthcoming upon review ",p:1,x:852,y:1263,w:321,h:16},
{t:"and recommendation.",p:1,x:852,y:1284,w:162,h:16},
{t:"For more information and/or application ",p:1,x:852,y:1325,w:307,h:16},
{t:"please contact Sara Loud, ACP NMO ",p:1,x:852,y:1346,w:285,h:16},
{t:"Repository Director at phone number: ",p:1,x:852,y:1367,w:290,h:16},
{t:"(781) 487-0008 or fax number: (781) ",p:1,x:852,y:1388,w:283,h:16},
{t:"487-0009 or visit the ACP website at: ",p:1,x:852,y:1409,w:286,h:16},
{t:"http://www.acceleratedcure.org. ",p:1,x:852,y:1429,w:244,h:17},
{t:"The Guthy-Jackson Charitable Foundation ",p:1,x:244,y:773,w:798,h:52},
{t:"Launches Repository for NMO Patients",p:1,x:271,y:817,w:731,h:52},
{t:"SUMMER 2009	        ",p:1,x:72,y:212,w:152,h:19},
{t:"	",p:1,x:614,y:212,w:4,h:19},
{t:"                                                      NEWSLETTER - VOLUME  ONE",p:1,x:719,y:212,w:478,h:19},
{t:"\"As we collaborate on this journey, we ",p:1,x:674,y:306,w:491,h:42},
{t:"have the opportunity to fund basic ",p:1,x:674,y:348,w:434,h:42},
{t:"science research to find answers that will ",p:1,x:674,y:389,w:518,h:42},
{t:"lead to prevention, clinical treatments, ",p:1,x:674,y:431,w:482,h:42},
{t:"and an eventual cure for NMO ",p:1,x:674,y:473,w:402,h:42},
{t:"Spectrum Disease.\" ",p:1,x:674,y:514,w:256,h:42},
{t:"-Victoria Jackson, Founder",p:1,x:674,y:555,w:267,h:32},
{t:"The Guthy-Jackson Charitable Foundation",p:1,x:674,y:586,w:425,h:32},
{t:"For
more
informa+on
about
The
Guthy‐",p:1,x:674,y:653,w:434,h:33},
{t:"Jackson
Founda+on,
please
see
page
4.",p:1,x:674,y:684,w:429,h:33},
{t:"“Mascara to Medicine” ",p:1,x:275,y:1484,w:222,h:26},
{t:"Part 1 - our Founder’s ",p:1,x:275,y:1507,w:206,h:26},
{t:"Journey Page 2.",p:1,x:275,y:1528,w:144,h:26},
{t:"About Us",p:1,x:660,y:1474,w:101,h:24},
{t:"The Guthy-Jackson Charitable Foundation ",p:1,x:660,y:1497,w:347,h:23},
{t:"is dedicated to funding basic science ",p:1,x:660,y:1520,w:300,h:23},
{t:"research for NMO research. Page 4.",p:1,x:660,y:1543,w:293,h:23},
{t:"LETTER FROM ",p:1,x:83,y:1482,w:164,h:22},
{t:"THE EDITOR  ",p:1,x:94,y:1505,w:150,h:22},
{t:"PAGE 3",p:1,x:123,y:1528,w:79,h:22},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:1,x:444,y:1577,w:440,h:22},
{t:"The SPECTRUM",p:1,x:406,y:95,w:739,h:114},
{t:"Mascara to Medicine",p:2,x:278,y:79,w:747,h:86},
{t:"by Victoria Jackson, Founder ",p:2,x:469,y:157,w:344,h:33},
{t:"The Guthy-Jackson Charitable Foundation",p:2,x:387,y:199,w:500,h:33},
{t:"First published April 22, 2009 at www.huffingtonpost.com",p:2,x:354,y:242,w:567,h:24},
{t:"I’ve always thought of myself as a “goodwill ambassador for makeup” and empowering women through makeup has been one ",p:2,x:89,y:291,w:1060,h:20},
{t:"of my missions in life. My personal philosophy has always been, “When you look better, you feel better. And when you feel ",p:2,x:89,y:314,w:1026,h:20},
{t:"better, you can change your life.” I often volunteer at women’s correctional facilities, hospitals, and youth support venues to ",p:2,x:89,y:337,w:1031,h:20},
{t:"spread this message and to teach inner confidence through outer beauty. When women embrace self-confidence, they learn the ",p:2,x:89,y:359,w:1051,h:20},
{t:"key to success, and liking who they see in the mirror is a powerful first step in that transformative process. I call this program ",p:2,x:89,y:382,w:1041,h:20},
{t:"“The Power of Mascara.” Building my cosmetics brand these past twenty years has enabled me to touch millions of women’s ",p:2,x:89,y:405,w:1038,h:20},
{t:"lives through the power of makeup. What I didn’t realize during all this time was that my experience in beauty was organically ",p:2,x:89,y:428,w:1058,h:20},
{t:"preparing me for the next phase of my life - “The Power of Medicine.”",p:2,x:89,y:451,w:580,h:20},
{t:"* * *",p:2,x:621,y:474,w:31,h:20},
{t:"N.M.O. Most of us look at these as just letters of the alphabet. In the moment the doctor uttered these three letters, my life, and the ",p:2,x:89,y:507,w:1082,h:20},
{t:"lives of my family, were instantly changed forever. It all started when my fifteen-year-old daughter’s vision became impaired in her ",p:2,x:89,y:530,w:1093,h:20},
{t:"left eye, losing the ability to see color and rapidly getting worse over days to come. We were perplexed and desperately trying to ",p:2,x:89,y:553,w:1068,h:20},
{t:"find the cause. Our search brought us to the Mayo Clinic, where my daughter was officially diagnosed with Neuromyelitis Optica ",p:2,x:89,y:576,w:1078,h:20},
{t:"(NMO) Spectrum Disease, or NMO. After the initial shock of the diagnosis in June 2008, I immersed myself in researching this ",p:2,x:89,y:599,w:1046,h:20},
{t:"disease to understand everything there was to know about it, and how NMO would ultimately impact my daughter and our family.",p:2,x:89,y:622,w:1091,h:20},
{t:"
",p:2,x:89,y:645,w:4,h:20},
{t:"In addition to literally reading every piece of information and NMO research articles available on the Web, I met with many ",p:2,x:89,y:668,w:1028,h:20},
{t:"clinicians to expand my knowledge about the disease. It quickly became evident that not only is NMO considered an “orphan” ",p:2,x:89,y:691,w:1054,h:20},
{t:"disease, but that very little research is available. We were fortunate to meet Dr. Katja Van Herle through our research and met with ",p:2,x:89,y:714,w:1082,h:20},
{t:"her organization, the All Greater Good Foundation in early July 2008 when it became clear that there is little-to-no funding available ",p:2,x:89,y:736,w:1096,h:20},
{t:"to research this rare and often misunderstood disease.  We joined hands with the All Greater Good Foundation to immediately ",p:2,x:89,y:759,w:1050,h:20},
{t:"begin our work, and thus, The Guthy-Jackson Charitable Foundation was born.",p:2,x:89,y:782,w:656,h:20},
{t:"
",p:2,x:89,y:805,w:4,h:20},
{t:"Our goal was to create a platform to give NMO, and related orphan diseases a voice. Our mission became clear: To fund research in ",p:2,x:89,y:828,w:1091,h:20},
{t:"the search to understand the pathophysiology and biochemistry of NMO Spectrum Disease. We wanted to support and provide ",p:2,x:89,y:851,w:1061,h:20},
{t:"opportunities to develop programs for prevention, clinical treatments, and an eventual cure for NMO. We also were adamant that ",p:2,x:89,y:874,w:1077,h:20},
{t:"100% of all funding gifts are to be given to basic science research centers.",p:2,x:89,y:897,w:600,h:20},
{t:"We interviewed the best medical advisors to join our team, and set forth the first medical roundtable of its kind in November 2008. ",p:2,x:89,y:943,w:1084,h:20},
{t:"The Guthy-Jackson Foundation hosted a meeting with a group of top medical advisors, researchers, and clinicians from around the ",p:2,x:89,y:966,w:1088,h:20},
{t:"world to help find answers that will lead to the prevention, clinical treatment programs and a potential cure for Neuromyelitis ",p:2,x:89,y:989,w:1049,h:20},
{t:"Optica (NMO) Spectrum Disease. This group freely shared their research and clinical information in the spirit of finding answers. It ",p:2,x:89,y:1011,w:1091,h:20},
{t:"was at this meeting that I  realized that my personal mission had made the transition from Mascara to Foundation, but not the ",p:2,x:89,y:1034,w:1046,h:20},
{t:"cosmetic foundation that I am known for and built my success upon. It was a different kind of foundation this time – a medical ",p:2,x:89,y:1057,w:1054,h:20},
{t:"foundation. The irony of it all was not lost on me. I always used to say to aspiring makeup artists, “It’s not like we are curing ",p:2,x:89,y:1080,w:1036,h:20},
{t:"cancer,” and now, here I am trying to cure a rare orphan disease.",p:2,x:89,y:1103,w:531,h:20},
{t:"So, what is NMO, you ask? Neuromyelitis optica (NMO) is an uncommon disease—a syndrome of the central nervous system ",p:2,x:89,y:1149,w:1046,h:20},
{t:"(CNS) that affects the optic nerves and the spinal cord. NMO is sometimes confused with Multiple Sclerosis. NMO is similar to MS ",p:2,x:89,y:1172,w:1086,h:20},
{t:"in that it is a variant along the spectrum in the world of autoimmune disease, but it is a completely different disease. ",p:2,x:89,y:1195,w:966,h:20},
{t:"Continued on page 4.",p:2,x:89,y:1218,w:193,h:22},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:2,x:417,y:1583,w:440,h:22},
{t:"“You need to accept your situation if you want to be empowered ",p:2,x:97,y:1262,w:646,h:27},
{t:"to change it...Once you accept that the disease or other ",p:2,x:97,y:1296,w:551,h:27},
{t:"misfortune has become a part of your life, you can marshal your ",p:2,x:97,y:1329,w:645,h:27},
{t:"forces to eliminate or alter it. If you avoid thinking about it, deny ",p:2,x:97,y:1362,w:658,h:27},
{t:"it or feel hopeless, you cannot play a part in changing it and your ",p:2,x:97,y:1396,w:662,h:27},
{t:"life. Accepting the situation does not mean accepting someone ",p:2,x:97,y:1429,w:626,h:27},
{t:"else's prediction about what will happen to you. No one knows ",p:2,x:97,y:1462,w:633,h:27},
{t:"what your future will be...Individuals are not statistics.” ",p:2,x:97,y:1492,w:575,h:30},
{t:"-Bernie Siegel, Surgeon and Writer",p:2,x:97,y:1521,w:324,h:29},
{t:"RECOMMENDED READING...",p:2,x:798,y:1282,w:362,h:31},
{t:"“Healing: Advice for Recovering ",p:2,x:786,y:1357,w:392,h:31},
{t:"Your Inner Strength and Spirit ",p:2,x:800,y:1395,w:364,h:31},
{t:"from the World's Most Famous ",p:2,x:792,y:1432,w:380,h:31},
{t:"Survivors” ",p:2,x:916,y:1470,w:131,h:31},
{t:"by Jena Pincott",p:2,x:884,y:1507,w:188,h:31},
{t:"2",p:2,x:1195,y:1583,w:11,h:26},
{t:"Letter from Ali Guthy",p:3,x:190,y:150,w:550,h:71},
{t:"Managing Editor ",p:3,x:292,y:211,w:358,h:57},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:3,x:417,y:1581,w:440,h:22},
{t:"Dear
Friends,",p:3,x:93,y:328,w:107,h:21},
{t:"My
name
is
Ali
Guthy
and
I
was
diagnosed
with
Neuromyelitis
Optica
(NMO)
Spectrum
Disease
my
freshman
year
of
high
school.
",p:3,x:93,y:373,w:1024,h:21},
{t:"When
I
had
Cirst
shown
signs
of
the
disease
(although
I
wouldn’t
so
much
call
it
a
disease,
but
more
of
a
lifestyle),
I
was
fortunate
",p:3,x:93,y:396,w:1026,h:21},
{t:"enough
to
have
parents
who
not
only
could
Cinancially
provide
for
the
most
prestigious
doctors
to
research
my
case,
but
also
whose
",p:3,x:93,y:419,w:1048,h:21},
{t:"never‐ending
love
and
support
has
helped
me
surmount
even
the
most
difCicult
obstacles.
",p:3,x:93,y:442,w:716,h:21},
{t:"My
mom
especially
has
played
a
crucial
role
in
becoming
my
comrade
or
“Cirst
in
command”
throughout
this
mini
battle
I’ve
been
",p:3,x:93,y:488,w:1030,h:21},
{t:"facing.
She
sacriCiced
her
career,
her
life
and
most
of
her
hair
(unfortunately
the
coloring
lasts
no
more
than
a
week
now,
until
Cinally
",p:3,x:93,y:511,w:1055,h:21},
{t:"her
naturally
grey
hairs
start
to
seep
through
the
artiCicial
brown
locks).
Anyway,
after
a
year
of
disbelief
and
utter
ignorance
of
the
",p:3,x:93,y:534,w:1045,h:21},
{t:"seriousness
of
my
condition,
I
Cinally
became
more
open
to
discussing
my
new
lifestyle.
I
was
inspired
by
the
work
my
mom
had
done
",p:3,x:93,y:557,w:1064,h:21},
{t:"in
the
short
year
I
had
been
diagnosed
and
I
began
to
feel
compelled
to
do
my
part
in
aiding
a
noble
and
close‐to‐home
cause.
",p:3,x:93,y:580,w:999,h:21},
{t:"The
idea
for
the
newsletter
began
during
my
10th
grade
community
service
assembly.
All
the
speakers
discussed
charities,
which
",p:3,x:93,y:625,w:1025,h:22},
{t:"don’t
get
me
wrong
all
seemed
great,
but
nothing
really
spoke
to
me.
That’s
when
I
began
to
wonder
how
my
hapless
circumstance
",p:3,x:93,y:648,w:1041,h:21},
{t:"could
be
somewhat
beneCicial.
So
that
night
I
discussed
some
various
options
with
my
mom
on
how
I
could
get
more
involved
in
what
",p:3,x:93,y:671,w:1064,h:21},
{t:"is
really
my
charity.
I
began
to
think
of
all
the
things
I
would
have
wanted
when
I
Cirst
got
the
diagnosis.
I
remember
there
was
no
",p:3,x:93,y:694,w:1028,h:21},
{t:"information
available.
Absolutely
none.
We
had
to
work
from
the
ground
up
and
I
didn’t
want
anyone
to
go
through
the
same
thing
I
",p:3,x:93,y:717,w:1050,h:21},
{t:"did
and
thus,
the
newsletter
was
born.
It
wasn’t
until
a
couple
weeks
later
when
the
team
started
to
come
together,
that
I
was
named
",p:3,x:93,y:740,w:1056,h:21},
{t:"their
honorary

“Managing
Editor.”
It
was
a
position
I
wasn’t
quite
prepared
for,
but
I
think
in
the
end
was
a
position
I
needed
to
have.
",p:3,x:93,y:763,w:1059,h:21},
{t:"I
started
thinking
about
topics
that
would
not
only
be
informative,
but
also
fun
and
uplifting
to
both
new
and
previously
diagnosed
",p:3,x:93,y:786,w:1042,h:21},
{t:"NMO
patients.
I
wanted
these
topics
to
show
that
yes,
NMO
is
a
rare
disorder,
but
no,
it
does
not
have
to
stop
you
from
living.
",p:3,x:93,y:809,w:992,h:21},
{t:"Since
I’ve
been
diagnosed
I
have
been
MVP
of
my
tennis
league
(not
team,
but
league,
which
is
much
better),
I’ve
discovered
a
love
for
",p:3,x:93,y:855,w:1064,h:21},
{t:"photography ,
I’ve
been
a
journalist
for
my
school
paper
(I
will
be
focus
editor
next
year,
which
is
a
considerable
step
forward)
and
I’ve
",p:3,x:93,y:877,w:1066,h:21},
{t:"been
riding
my
horse
every
weekend
on
the
side
–
you
know,
just
for
fun.
All
these
things
I
had
done
before
my
diagnosis
and
I
",p:3,x:93,y:900,w:1008,h:21},
{t:"continue
to
do
now.
Of
course,
there
are
some
days
when
I’ll
come
back
from
riding
and
there’ll
be
a
nurse
waiting
in
my
room
for
a
",p:3,x:93,y:923,w:1047,h:21},
{t:"steroid
infusion,
but
then
later
in
the
day
I’ll
happen
to
Cind
myself
strolling
through
the
mall
with
one
of
my
friends.
Sure,
having
",p:3,x:93,y:946,w:1028,h:21},
{t:"NMO
–
well
quite
frankly
–

it
sucks,
but
there
is
hope.
No
one
should
have
to
sit
on
the
sidelines
of
their
tennis
match
or
just
watch
",p:3,x:93,y:969,w:1042,h:21},
{t:"someone
else
ride
their
horse
because
of
some
microscopic
malfunction
in
their
DNA.
I
refuse
to
be
restricted
or
limited
by
anything,
",p:3,x:93,y:992,w:1059,h:21},
{t:"especially
not
myself
and
my
own
body .
",p:3,x:93,y:1015,w:318,h:21},
{t:"My
dreams
have
not
changed
and
the
chances
of
my
success
are
still
as
strong
as
they’ve
ever
been.
So
to
all
of
you
who
are
facing
",p:3,x:93,y:1061,w:1032,h:21},
{t:"what
seems
to
be
an
insurmountable
barrier ,
remember
there
is
always
hope,
and
that
hope
will
never
cease
to
exist
until
the
battle
is
",p:3,x:93,y:1084,w:1066,h:21},
{t:"won
and
a
cure
is
discovered.
That
is
the
mission
of
The
Guthy‐Jackson
Charitable
Foundation
and
it
is
now
also
my
personal
mission. 
",p:3,x:93,y:1107,w:1066,h:21},
{t:"I
know
how
it
feels
to
be
the
one
in
the
hospital
bed.
I
know
what
it’s
like
to
sit
in
Cive
different
doctors’
ofCices
in
one
day.
I
know
",p:3,x:93,y:1130,w:1025,h:21},
{t:"what
it’s
like
to
have
a
bunch
of
different
people
come
up
and
probe
you
like
some
guinea
pig
on
an
operating
table.
And
sure,
it’s
not
",p:3,x:93,y:1152,w:1059,h:21},
{t:"fun,
but
now
I
know
I’m
not
just
suffering
through
it
for
me
anymore.
This
whole
foundation
is
not
just
about
me
anymore.
It’s
about
",p:3,x:93,y:1175,w:1055,h:21},
{t:"each
and
every
person
whose
lives
have
been
affected
by
NMO.
So
now
every
time
my
mom
tells
me
I
have
to
go
to
the
University
of
",p:3,x:93,y:1198,w:1047,h:21},
{t:"California,
Los
Angeles
(UCLA)
to
draw
some
blood
after
school
or
I’m
going
to
have
to
visit
a
doctor
at
the
Mayo
Clinic
during
spring
",p:3,x:93,y:1221,w:1057,h:21},
{t:"break,
I
think
about
all
the
people
I’m
potentially
going
to
help,
all
the
lives
that
are
not
going
to
have
to
experience
the
same
thing
I
",p:3,x:93,y:1244,w:1048,h:21},
{t:"did.
I
guess
in
the
end,
I’m
sort
of
glad
this
all
happened
to
me.
At
least
I
know
I
can
handle
anything
this
disease
is
going
to
dish
out
",p:3,x:93,y:1267,w:1049,h:21},
{t:"at
me
and
I
know
that
no
matter
what,
I
will
always
have
people
to
love
and
comfort
me
the
entire
time.
So
I
guess
in
the
end,
that’s
",p:3,x:93,y:1290,w:1044,h:21},
{t:"why
I
wanted
to
start
this
whole
newsletter.
I
thought
that
if
everyone
with
NMO
banned
together ,
really
thought
about
what
we
are
",p:3,x:93,y:1313,w:1050,h:21},
{t:"Cighting
for,
we
could
Cind
a
cure
(and
a
lot
faster
too).
Working
together
is
the
pathway
to
the
cure
and
I’m
conCident
that
if
we
all
",p:3,x:93,y:1336,w:1031,h:21},
{t:"come
together
as
a
community
we
will
succeed.
NMO,
ha,
those
three
letters
will
never
bring
me
down
again.
Thanks
for
all
the
",p:3,x:93,y:1359,w:1012,h:21},
{t:"support.
",p:3,x:93,y:1382,w:71,h:21},
{t:"Your
Managing
Editor,",p:3,x:93,y:1427,w:175,h:21},
{t:"Ali
Guthy",p:3,x:93,y:1450,w:73,h:21},
{t:"3",p:3,x:1195,y:1583,w:11,h:26},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:4,x:417,y:1590,w:440,h:22},
{t:"The Guthy-Jackson Charitable Foundation is dedicated to funding basic ",p:4,x:414,y:848,w:690,h:22},
{t:"science research to find answers that will lead to the prevention, clinical ",p:4,x:414,y:875,w:686,h:22},
{t:"treatment programs and a potential cure for Neuromyelitis Optica (NMO) ",p:4,x:414,y:902,w:704,h:22},
{t:"Spectrum Disease.",p:4,x:414,y:929,w:175,h:22},
{t:"The decision to create our Foundation came from a personal family crisis. Our ",p:4,x:414,y:983,w:744,h:22},
{t:"daughter was officially diagnosed with NMO in June 2008. Since that time, we ",p:4,x:414,y:1010,w:748,h:22},
{t:"have met with many clinicians and researchers in order to understand what ",p:4,x:414,y:1037,w:719,h:22},
{t:"this means for our beautiful daughter and our family. Additionally, we have ",p:4,x:414,y:1064,w:726,h:22},
{t:"gathered and read every piece of information and NMO research article that is ",p:4,x:414,y:1092,w:747,h:22},
{t:"available on the Web.  We are now beginning to understand that NMO is not ",p:4,x:414,y:1119,w:732,h:22},
{t:"only considered an “orphan” disease, but that very little research is available.",p:4,x:414,y:1146,w:734,h:22},
{t:"We met with the All Greater Good Foundation in early July 2008 when it ",p:4,x:414,y:1200,w:692,h:22},
{t:"became clear that there is little-to-no funding available to research this rare ",p:4,x:414,y:1227,w:717,h:22},
{t:"and often misunderstood disease. We joined hands with the All Greater Good ",p:4,x:414,y:1254,w:744,h:22},
{t:"Foundation to immediately begin our work, and thus, The Guthy-Jackson ",p:4,x:414,y:1281,w:704,h:22},
{t:"Charitable Foundation was born.",p:4,x:414,y:1308,w:313,h:22},
{t:"The Guthy-Jackson Charitable Foundation is dedicated to funding biomedical ",p:4,x:414,y:1362,w:748,h:22},
{t:"research in the search to understand the pathophysiology and biochemistry of ",p:4,x:414,y:1389,w:744,h:22},
{t:"NMO Spectrum Disease. It is our greatest hope that together we will reverse ",p:4,x:414,y:1417,w:729,h:22},
{t:"the effects of NMO and eventually cure this disease.",p:4,x:414,y:1444,w:496,h:22},
{t:"Sincerely,",p:4,x:414,y:1498,w:92,h:22},
{t:"Bill Guthy and Victoria Jackson, Founders",p:4,x:414,y:1525,w:401,h:22},
{t:"Photo by MATTHEW ROLSTON",p:4,x:168,y:1274,w:209,h:18},
{t:"Individuals with NMO can go on to develop optic neuritis, which causes pain in ",p:4,x:91,y:184,w:669,h:20},
{t:"the eye and vision loss, and transverse myelitis, which causes weakness, ",p:4,x:91,y:207,w:603,h:20},
{t:"numbness, and sometimes paralysis of the arms and legs, along with sensory ",p:4,x:91,y:230,w:642,h:20},
{t:"disturbances and loss of bladder and bowel control. NMO leads to loss of ",p:4,x:91,y:253,w:612,h:20},
{t:"myelin, which is a fatty substance that surrounds nerve fibers and helps nerve ",p:4,x:91,y:276,w:651,h:20},
{t:"signals move from cell to cell. The syndrome can also damage nerve fibers and ",p:4,x:91,y:299,w:654,h:20},
{t:"leave areas of broken-down tissue. In the disease process of NMO, for reasons ",p:4,x:91,y:322,w:649,h:20},
{t:"that aren't yet clear, immune system cells and antibodies attack and destroy ",p:4,x:91,y:344,w:629,h:20},
{t:"myelin cells in the optic nerves and the spinal cord.1",p:4,x:91,y:367,w:429,h:20},
{t:"I am working closely with my daughter’s primary care physician, a pioneer in ",p:4,x:91,y:413,w:651,h:20},
{t:"NMO research, in managing her clinical care. My daughter is doing well at this ",p:4,x:91,y:436,w:658,h:20},
{t:"point, and I am thankful for that. She continues to thrive at school, and remains ",p:4,x:91,y:459,w:661,h:20},
{t:"active in sports. She is my one and only daughter – a one of a kind, beautiful, ",p:4,x:91,y:482,w:642,h:20},
{t:"smart, spirited and loving girl.",p:4,x:91,y:505,w:253,h:20},
{t:"As the Founder of the Guthy-Jackson Charitable Foundation, I am unwavering ",p:4,x:91,y:551,w:657,h:20},
{t:"in my commitment and quest to find a cure for my daughter and all those ",p:4,x:91,y:574,w:614,h:20},
{t:"afflicted with NMO Spectrum Disease. For more information about ",p:4,x:91,y:597,w:560,h:20},
{t:"Neuromyelitis Optica (NMO) Spectrum Disease, please visit ",p:4,x:91,y:619,w:503,h:20},
{t:"www.guthyjacksonfoundation.org.",p:4,x:91,y:642,w:290,h:20},
{t:"1 Excerpts taken from: NINDS Neuromyelitis Optica Information Page. To view the ",p:4,x:91,y:713,w:616,h:18},
{t:"complete article, see:",p:4,x:91,y:736,w:152,h:18},
{t:"http://www.ninds.nih.gov/disorders/neuromyelitis",p:4,x:91,y:759,w:392,h:18},
{t:"Mascara to Medicine ",p:4,x:109,y:82,w:439,h:57},
{t:"Continued from Page 2.",p:4,x:528,y:105,w:191,h:28},
{t:"Healthy Living                      ",p:4,x:870,y:85,w:320,h:42},
{t:"New Paradigms in ",p:4,x:845,y:122,w:285,h:42},
{t:"Medicine",p:4,x:912,y:160,w:141,h:42},
{t:"“ENERGY MEDICINE AND THE ",p:4,x:846,y:214,w:284,h:16},
{t:"EVALUATION OF TOXICITY”",p:4,x:855,y:235,w:261,h:16},
{t:"By Michael Galitzer, M.D. ",p:4,x:881,y:251,w:214,h:21},
{t:"When a patient goes to see a physician for an ",p:4,x:787,y:297,w:402,h:16},
{t:"evaluation of ",p:4,x:787,y:318,w:108,h:16},
{t:"\"I don't feel well,\" ",p:4,x:904,y:318,w:160,h:16},
{t:"the ",p:4,x:1073,y:318,w:26,h:16},
{t:"traditional ",p:4,x:1108,y:318,w:81,h:16},
{t:"approach ",p:4,x:787,y:339,w:73,h:16},
{t:"is ",p:4,x:869,y:339,w:18,h:16},
{t:"to ",p:4,x:895,y:339,w:19,h:16},
{t:"look ",p:4,x:923,y:339,w:39,h:16},
{t:"at ",p:4,x:970,y:339,w:19,h:16},
{t:"a ",p:4,x:997,y:339,w:13,h:16},
{t:"person's ",p:4,x:1019,y:339,w:66,h:16},
{t:"PHYSICAL ",p:4,x:1093,y:339,w:96,h:16},
{t:"structure through a physical examination, X-rays, ",p:4,x:787,y:360,w:402,h:16},
{t:"CT Scan, MRI, mammograms and biopsies. Patients ",p:4,x:787,y:380,w:402,h:16},
{t:"are also evaluated CHEMICALLY through blood ",p:4,x:787,y:401,w:402,h:16},
{t:"tests. This will rule out whether or not a disease is ",p:4,x:787,y:422,w:402,h:16},
{t:"present or impending. However, this will frequently ",p:4,x:787,y:443,w:402,h:16},
{t:"not give us information as to how healthy or not ",p:4,x:787,y:464,w:402,h:16},
{t:"healthy a person is. Traditional medicine sees health ",p:4,x:787,y:485,w:402,h:16},
{t:"as the absence of disease, whereas energy medicine ",p:4,x:787,y:505,w:402,h:16},
{t:"(or electrical medicine) sees health at one end and ",p:4,x:787,y:526,w:402,h:16},
{t:"disease ",p:4,x:787,y:547,w:63,h:16},
{t:"at ",p:4,x:859,y:547,w:20,h:16},
{t:"the ",p:4,x:887,y:547,w:29,h:16},
{t:"other ",p:4,x:926,y:547,w:45,h:16},
{t:"end, ",p:4,x:981,y:547,w:37,h:16},
{t:"with ",p:4,x:1029,y:547,w:40,h:16},
{t:"most ",p:4,x:1078,y:547,w:42,h:16},
{t:"patient ",p:4,x:1131,y:547,w:59,h:16},
{t:"complaints lying somewhere in between DISEASE ",p:4,x:787,y:568,w:402,h:16},
{t:"AND HEALTH. As ",p:4,x:787,y:589,w:175,h:16},
{t:"an example, ",p:4,x:971,y:589,w:107,h:16},
{t:"fatigue ",p:4,x:1089,y:589,w:59,h:16},
{t:"and ",p:4,x:1157,y:589,w:32,h:16},
{t:"insomnia are not diseases, and yet are certainly not ",p:4,x:787,y:610,w:402,h:16},
{t:"associated with good health.",p:4,x:787,y:630,w:212,h:16},
{t:"Energy Medicine seeks to evaluate the energy of the ",p:4,x:787,y:672,w:402,h:16},
{t:"cells, organs and glands of the body. Are the cells ",p:4,x:787,y:693,w:402,h:16},
{t:"making enough energy? Are the cells able to hold on ",p:4,x:787,y:714,w:402,h:16},
{t:"to the energy that is being created through oxidative ",p:4,x:787,y:735,w:402,h:16},
{t:"phosphorylation? ",p:4,x:787,y:755,w:134,h:16},
{t:"Continued on page 6.",p:4,x:787,y:797,w:161,h:16},
{t:"4",p:4,x:1195,y:1583,w:11,h:26},
{t:"Q & A about NMO with Ben Greenberg, M.D, M.H.S. ",p:5,x:81,y:80,w:1123,h:57},
{t:"University of Texas, SouthWestern",p:5,x:81,y:131,w:525,h:42},
{t:"Donec arcu risus diam amet sit. ",p:5,x:858,y:584,w:296,h:30},
{t:"Congue tortor cursus risus ",p:5,x:858,y:613,w:241,h:30},
{t:"vestibulum commodo nisl, luctus ",p:5,x:858,y:642,w:300,h:30},
{t:"augue amet quis aenean ",p:5,x:858,y:671,w:222,h:30},
{t:"maecenas sit, donec velit iusto, ",p:5,x:858,y:700,w:282,h:30},
{t:"morbi felis elit et nibh. ",p:5,x:858,y:729,w:212,h:30},
{t:"Vestibulum volutpat dui lacus ",p:5,x:858,y:759,w:277,h:30},
{t:"consectetuer, mauris at ",p:5,x:858,y:788,w:209,h:30},
{t:"suspendisse, eu wisi rhoncus eget ",p:5,x:858,y:817,w:304,h:30},
{t:"nibh velit, eget posuere sem in a ",p:5,x:858,y:846,w:293,h:30},
{t:"sit. Sociosqu netus semper ",p:5,x:858,y:875,w:241,h:30},
{t:"aenean suspendisse dictum, arcu ",p:5,x:858,y:904,w:299,h:30},
{t:"enim conubia leo nulla ac.",p:5,x:858,y:934,w:238,h:30},
{t:"Montes et metus adipiscing ",p:5,x:858,y:963,w:253,h:30},
{t:"placerat consectetuer nunc.",p:5,x:858,y:992,w:238,h:30},
{t:"Q & A WITH BEN ",p:5,x:93,y:235,w:205,h:23},
{t:"GREENBERG, M.D., M.H.S.",p:5,x:93,y:264,w:318,h:23},
{t:"University of Texas, ",p:5,x:93,y:294,w:241,h:23},
{t:"SouthWestern Medical ",p:5,x:93,y:323,w:274,h:23},
{t:"Center",p:5,x:93,y:352,w:79,h:23},
{t:"Q - What are the most ",p:5,x:93,y:401,w:243,h:21},
{t:"effective treatment options?",p:5,x:93,y:426,w:306,h:21},
{t:"To date there are several options for ",p:5,x:93,y:471,w:305,h:17},
{t:"treating neuromyelitis optica, such as ",p:5,x:93,y:492,w:313,h:17},
{t:"rituximab (Rituxan®), mycophenolate ",p:5,x:93,y:512,w:309,h:18},
{t:"mofetil (Cellcept®), and azathioprine ",p:5,x:93,y:532,w:304,h:18},
{t:"(Imuran®). There have been no head-",p:5,x:93,y:553,w:311,h:18},
{t:"to-head trials of these agents, but they ",p:5,x:93,y:575,w:324,h:17},
{t:"all have data to support their use in ",p:5,x:93,y:596,w:297,h:17},
{t:"NMO. Choosing amongst them is ",p:5,x:93,y:617,w:281,h:17},
{t:"based on pros and cons that are ",p:5,x:93,y:638,w:274,h:17},
{t:"specific to each individual patient.",p:5,x:93,y:659,w:279,h:17},
{t:"Q - What are the long-term ",p:5,x:93,y:701,w:294,h:21},
{t:"effects of treatments ",p:5,x:93,y:726,w:231,h:21},
{t:"including steroid infusions?",p:5,x:93,y:751,w:306,h:21},
{t:"The long-term effects of treatments are ",p:5,x:93,y:796,w:328,h:17},
{t:"dependent on the treatment used and ",p:5,x:93,y:817,w:317,h:17},
{t:"can be quite variable. In general, here ",p:5,x:93,y:838,w:319,h:17},
{t:"is a partial list of known long-term ",p:5,x:93,y:859,w:283,h:17},
{t:"effects that should be considered:",p:5,x:93,y:879,w:280,h:17},
{t:"1.",p:5,x:93,y:917,w:20,h:23},
{t:"Steroids – long-term exposure to ",p:5,x:130,y:921,w:277,h:17},
{t:"steroids can increase the risk of ",p:5,x:130,y:942,w:268,h:17},
{t:"diabetes, hypertension, high ",p:5,x:130,y:963,w:239,h:17},
{t:"cholesterol, cataracts, ",p:5,x:130,y:984,w:187,h:17},
{t:"osteoporosis and infections. The ",p:5,x:130,y:1004,w:274,h:17},
{t:"risks are related to both the ",p:5,x:130,y:1025,w:232,h:17},
{t:"duration of exposure and dosage ",p:5,x:130,y:1046,w:279,h:17},
{t:"used.",p:5,x:130,y:1067,w:45,h:17},
{t:"2.",p:5,x:93,y:1104,w:20,h:23},
{t:"Rituximab (Rituxan®)– There are ",p:5,x:130,y:1107,w:275,h:18},
{t:"no long-term studies looking at ",p:5,x:130,y:1129,w:260,h:17},
{t:"risks of exposure to rituximab. In ",p:5,x:130,y:1150,w:275,h:17},
{t:"the short term, the biggest risk is ",p:5,x:130,y:1171,w:276,h:17},
{t:"of infections. There have also been ",p:5,x:130,y:1192,w:296,h:17},
{t:"reported cases of a brain infection, ",p:5,x:130,y:1213,w:294,h:17},
{t:"called PML (progressive multifocal ",p:5,x:130,y:1234,w:290,h:17},
{t:"leukoencephalopathy) in patients ",p:5,x:130,y:1254,w:279,h:17},
{t:"on rituximab, although the link is ",p:5,x:130,y:1275,w:273,h:17},
{t:"unclear. ",p:5,x:130,y:1296,w:70,h:17},
{t:"3.",p:5,x:93,y:1333,w:20,h:23},
{t:"Mycophenolate mofetil (Cellcept®) ",p:5,x:130,y:1337,w:287,h:18},
{t:"and Azathioprine  (Imuran®) – The ",p:5,x:130,y:1357,w:288,h:18},
{t:"major long-term risk of these ",p:5,x:130,y:1379,w:242,h:17},
{t:"agents is infection. In studies that ",p:5,x:130,y:1400,w:282,h:17},
{t:"followed transplant patients who ",p:5,x:130,y:1421,w:272,h:17},
{t:"were receiving these drugs for 10 ",p:5,x:130,y:1442,w:282,h:17},
{t:"years or more, there was an ",p:5,x:130,y:1463,w:238,h:17},
{t:"increased risk of certain cancers – ",p:5,x:130,y:1484,w:289,h:17},
{t:"including lymphoma and ",p:5,x:130,y:1504,w:207,h:17},
{t:"melanoma. This risk seems to be ",p:5,x:130,y:1525,w:279,h:17},
{t:"lower with mycophenolate, but ",p:5,x:520,y:234,w:257,h:17},
{t:"this data is limited. Based on ",p:5,x:520,y:254,w:243,h:17},
{t:"the risks, patients on one of ",p:5,x:520,y:275,w:234,h:17},
{t:"these agents should wear hats, ",p:5,x:520,y:296,w:264,h:17},
{t:"sunscreen and have annual ",p:5,x:520,y:317,w:235,h:17},
{t:"dermatologic exams.",p:5,x:520,y:338,w:172,h:17},
{t:"Q - Are there side effects to ",p:5,x:482,y:381,w:304,h:21},
{t:"so much exposure to MRIs ",p:5,x:482,y:406,w:297,h:21},
{t:"(such as cancer)?",p:5,x:482,y:431,w:194,h:21},
{t:"Great question. The short answer is, ",p:5,x:482,y:475,w:307,h:17},
{t:"“No.” MRIs are very different than X-",p:5,x:482,y:496,w:301,h:17},
{t:"rays and CT scans – there is NO ",p:5,x:482,y:517,w:276,h:17},
{t:"radiation. MRIs have been around ",p:5,x:482,y:538,w:287,h:17},
{t:"for more than 20 years. While there ",p:5,x:482,y:559,w:299,h:17},
{t:"have been no formal studies ",p:5,x:482,y:579,w:240,h:17},
{t:"tracking patients over time, there are ",p:5,x:482,y:600,w:309,h:17},
{t:"also no indications that repeated ",p:5,x:482,y:621,w:275,h:17},
{t:"exposure to a MRI machine ",p:5,x:482,y:642,w:234,h:17},
{t:"increased any health risks. There ",p:5,x:482,y:663,w:281,h:17},
{t:"are dangers to a MRI if you have ",p:5,x:482,y:684,w:277,h:17},
{t:"implanted devices or metal, because ",p:5,x:482,y:704,w:309,h:17},
{t:"it uses such a huge magnetic force, ",p:5,x:482,y:725,w:300,h:17},
{t:"so discuss the short-term safety with ",p:5,x:482,y:746,w:309,h:17},
{t:"your doctor if this applies to you.",p:5,x:482,y:767,w:268,h:17},
{t:"Q - What is the most ",p:5,x:482,y:810,w:227,h:21},
{t:"effective treatment for ",p:5,x:482,y:835,w:247,h:21},
{t:"stopping attacks?",p:5,x:482,y:860,w:196,h:21},
{t:"I wish I knew. Anecdotally, rituximab, ",p:5,x:482,y:904,w:309,h:17},
{t:"mycophenolate mofetil and ",p:5,x:482,y:925,w:229,h:17},
{t:"azathioprine probably are about ",p:5,x:482,y:946,w:268,h:17},
{t:"equally effective, but there are some ",p:5,x:482,y:967,w:307,h:17},
{t:"patients who clearly have a better ",p:5,x:482,y:988,w:284,h:17},
{t:"response to one or the other drug. ",p:5,x:482,y:1009,w:288,h:17},
{t:"We can tell who is who yet, so in ",p:5,x:482,y:1029,w:275,h:17},
{t:"general we say start with one and ",p:5,x:482,y:1050,w:284,h:17},
{t:"switch if a relapse occurs or side ",p:5,x:482,y:1071,w:276,h:17},
{t:"effects occur.",p:5,x:482,y:1092,w:110,h:17},
{t:"Q - How does diet affect ",p:5,x:482,y:1135,w:267,h:21},
{t:"most NMO patients?",p:5,x:482,y:1160,w:222,h:21},
{t:"We don’t know! There are no studies ",p:5,x:482,y:1204,w:311,h:17},
{t:"assessing the role of diet in groups ",p:5,x:482,y:1225,w:294,h:17},
{t:"of NMO patients. From experience, I ",p:5,x:482,y:1246,w:309,h:17},
{t:"can tell you that the better the ",p:5,x:482,y:1267,w:252,h:17},
{t:"general health of a patient, the ",p:5,x:482,y:1288,w:258,h:17},
{t:"better they do with the ups and ",p:5,x:482,y:1309,w:261,h:17},
{t:"downs of NMO. Some patients find a ",p:5,x:482,y:1329,w:311,h:17},
{t:"selective diet they feel help their ",p:5,x:482,y:1350,w:272,h:17},
{t:"disease and this is fine, as long as ",p:5,x:482,y:1371,w:290,h:17},
{t:"there is adequate balanced nutrition.",p:5,x:482,y:1392,w:303,h:17},
{t:"Q - What is the current main ",p:5,x:482,y:1435,w:312,h:21},
{t:"approach to curing NMO?",p:5,x:482,y:1460,w:281,h:21},
{t:"There are many active NMO ",p:5,x:482,y:1504,w:240,h:17},
{t:"programs around the world trying to ",p:5,x:482,y:1525,w:301,h:17},
{t:"cure this disease. Our treatments are ",p:5,x:845,y:554,w:313,h:17},
{t:"good, and for some they are potentially ",p:5,x:845,y:575,w:329,h:17},
{t:"cures. But some patients continue to ",p:5,x:845,y:596,w:308,h:17},
{t:"have relapses despite therapy. New ",p:5,x:845,y:617,w:301,h:17},
{t:"drugs are being evaluated all the time ",p:5,x:845,y:638,w:317,h:17},
{t:"and new treatment modalities are in ",p:5,x:845,y:659,w:302,h:17},
{t:"clinical trials. The approach to a cure is ",p:5,x:845,y:679,w:328,h:17},
{t:"very individualized. I recommend that if ",p:5,x:845,y:700,w:329,h:17},
{t:"a patient is not responding to one of the ",p:5,x:845,y:721,w:334,h:17},
{t:"first-line therapies mentioned above, ",p:5,x:845,y:742,w:307,h:17},
{t:"that they seek care at a tertiary center ",p:5,x:845,y:763,w:319,h:17},
{t:"with specific programs in NMO. ",p:5,x:845,y:784,w:264,h:17},
{t:"Q - Anything else?",p:5,x:845,y:826,w:201,h:21},
{t:"The one thing I would add is that there ",p:5,x:845,y:871,w:324,h:17},
{t:"is tremendous hope in the world of ",p:5,x:845,y:892,w:291,h:17},
{t:"NMO. I would argue, potentially more ",p:5,x:845,y:913,w:314,h:17},
{t:"hope than in diseases such as MS. ",p:5,x:845,y:934,w:295,h:17},
{t:"Understanding this disease is ",p:5,x:845,y:954,w:250,h:17},
{t:"accelerating and new treatments are on ",p:5,x:845,y:975,w:334,h:17},
{t:"the horizon. The medical and scientific ",p:5,x:845,y:996,w:323,h:17},
{t:"processes can never go fast enough for ",p:5,x:845,y:1017,w:334,h:17},
{t:"our patients struggling with these ",p:5,x:845,y:1038,w:279,h:17},
{t:"issues every day, but it is moving. ",p:5,x:845,y:1059,w:284,h:17},
{t:"There is every reason to believe that ",p:5,x:845,y:1079,w:308,h:17},
{t:"true cures for this disease will be found.",p:5,x:845,y:1100,w:329,h:17},
{t:"Dr. Greenberg is the Deputy Director of ",p:5,x:845,y:1142,w:330,h:17},
{t:"the Multiple Sclerosis Program and ",p:5,x:845,y:1163,w:295,h:17},
{t:"Director of the new Tranverse Myelitis ",p:5,x:845,y:1184,w:318,h:17},
{t:"and Neuromyelitis Optica Program at ",p:5,x:845,y:1204,w:312,h:17},
{t:"University of Texas SouthWestern ",p:5,x:845,y:1225,w:286,h:17},
{t:"Medical Center.",p:5,x:845,y:1246,w:130,h:17},
{t:"Interview conducted by Ali Guthy",p:5,x:845,y:1288,w:272,h:17},
{t:"Questions or ",p:5,x:845,y:1358,w:186,h:34},
{t:"Comments about The ",p:5,x:845,y:1394,w:308,h:34},
{t:"Spectrum Newsletter, ",p:5,x:845,y:1429,w:311,h:34},
{t:"please email us at: ",p:5,x:845,y:1464,w:266,h:34},
{t:"gjcf@4greatergood.org",p:5,x:845,y:1500,w:317,h:34},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:5,x:444,y:1577,w:440,h:22},
{t:"5",p:5,x:1195,y:1583,w:11,h:26},
{t:"Thank you for your consideration to donate to ",p:6,x:89,y:283,w:343,h:21},
{t:"the Foundation.  If you choose to donate, your ",p:6,x:89,y:305,w:346,h:21},
{t:"gift directly supports the innovative scientific ",p:6,x:89,y:330,w:330,h:21},
{t:"research of scientists who are working to find ",p:6,x:89,y:353,w:337,h:21},
{t:"solutions for Neuromyelitis Optica (NMO) ",p:6,x:89,y:378,w:318,h:21},
{t:"Spectrum Disease. 100 percent of your ",p:6,x:89,y:401,w:289,h:21},
{t:"donation goes directly to science research. The ",p:6,x:89,y:426,w:344,h:21},
{t:"Guthy-Jackson Charitable Foundation does not ",p:6,x:89,y:449,w:347,h:21},
{t:"allocate any donated monies to administrative ",p:6,x:89,y:474,w:335,h:21},
{t:"support of the Foundation.",p:6,x:89,y:497,w:199,h:21},
{t:"Once your contribution has been processed ",p:6,x:89,y:545,w:321,h:21},
{t:"you will receive a thank you letter in the mail ",p:6,x:89,y:570,w:328,h:21},
{t:"that you can use as a tax receipt. The Guthy-",p:6,x:89,y:593,w:323,h:21},
{t:"Jackson Charitable Foundation for NMO is a ",p:6,x:89,y:618,w:332,h:21},
{t:"non-profit 501(c)(3) organization Tax ID # ",p:6,x:89,y:641,w:319,h:21},
{t:"26-6461545.",p:6,x:89,y:666,w:89,h:21},
{t:"We accept all forms of monetary donations; ",p:6,x:89,y:710,w:325,h:21},
{t:"please visit our website at ",p:6,x:89,y:730,w:189,h:21},
{t:"www.guthyjacksonfoundation.org/donate to ",p:6,x:89,y:751,w:325,h:21},
{t:"donate using a credit card. For all other forms ",p:6,x:89,y:772,w:338,h:21},
{t:"of donations, please contact the All Greater ",p:6,x:89,y:793,w:323,h:21},
{t:"Good Foundation at: ",p:6,x:89,y:814,w:158,h:21},
{t:"All Greater Good Foundation",p:6,x:89,y:855,w:218,h:21},
{t:"8910 University Center Lane, Suite 725",p:6,x:89,y:876,w:283,h:21},
{t:"San Diego, CA 92122",p:6,x:89,y:897,w:157,h:21},
{t:"Phone: 858.638.7638",p:6,x:89,y:918,w:152,h:21},
{t:"Email: gjcf@4greatergood.org",p:6,x:89,y:939,w:220,h:21},
{t:"New NMO Clinical Trial",p:6,x:566,y:106,w:512,h:58},
{t:"Now Enrolling at the Mayo Clinic",p:6,x:550,y:166,w:544,h:43},
{t:"How You Can ",p:6,x:153,y:104,w:238,h:43},
{t:"Donate",p:6,x:207,y:158,w:120,h:43},
{t:"to GJCF ...",p:6,x:185,y:214,w:165,h:43},
{t:"WWW.GUTHYJACKSONFOUNDATION.ORG",p:6,x:444,y:1577,w:440,h:22},
{t:"Mayo Clinics in Minnesota and Arizona have launched a new ",p:6,x:489,y:283,w:622,h:21},
{t:"clinical trial for NMO patients. The purpose of the database is to ",p:6,x:489,y:308,w:651,h:21},
{t:"determine if eculizumab, a monoclonal antibody that interferes ",p:6,x:489,y:333,w:636,h:21},
{t:"with complement activation, reduces the frequency of NMO ",p:6,x:489,y:358,w:606,h:21},
{t:"attacks or improves outcome.",p:6,x:489,y:383,w:299,h:21},
{t:"The Primary Outcome Measures the reduction in number of NMO ",p:6,x:489,y:433,w:669,h:21},
{t:"attacks and determines safety for NMO.The Secondary Outcome ",p:6,x:489,y:458,w:664,h:21},
{t:"Measures improvement in the quality of life, visual function and ",p:6,x:489,y:483,w:644,h:21},
{t:"walking, and determines drug levels in blood and CSF.",p:6,x:489,y:508,w:551,h:21},
{t:"Experimental Drug Intervention:",p:6,x:489,y:557,w:317,h:19},
{t:"•",p:6,x:527,y:571,w:9,h:27},
{t:"The patient will receive eculizumab at a dose of 600mg ",p:6,x:564,y:580,w:512,h:19},
{t:"intravenously (by infusion into the vein) each week for 4 weeks, ",p:6,x:564,y:603,w:589,h:19},
{t:"900mg intravenously at the fifth week, and 900mg every 2 ",p:6,x:564,y:626,w:539,h:19},
{t:"weeks for 48 weeks.",p:6,x:564,y:649,w:188,h:19},
{t:"•",p:6,x:527,y:671,w:9,h:27},
{t:"The first infusion will be given at Mayo Clinic (Minnesota or ",p:6,x:564,y:680,w:547,h:19},
{t:"Arizona); subsequent infusions will be administered at home by ",p:6,x:564,y:701,w:588,h:19},
{t:"a nurse employed by Coram Home infusion services ",p:6,x:564,y:722,w:488,h:19},
{t:"(coordinated by a Study physician).",p:6,x:564,y:743,w:325,h:19},
{t:"Eligibility",p:6,x:489,y:774,w:92,h:19},
{t:"•",p:6,x:527,y:799,w:11,h:32},
{t:"Patients must be NMO-IgG seropositive, and have a diagnosis ",p:6,x:564,y:812,w:581,h:19},
{t:"of NMO (defined by 2006 criteria) or an NMO spectrum disorder ",p:6,x:564,y:832,w:593,h:19},
{t:"(recurrent optic neuritis or longitudinally extensive transverse ",p:6,x:564,y:853,w:566,h:19},
{t:"myelitis). ",p:6,x:564,y:874,w:87,h:19},
{t:"•",p:6,x:527,y:893,w:11,h:32},
{t:"Clinical evidence must document at least 2 relapses in the ",p:6,x:564,y:905,w:582,h:19},
{t:"past 6 months or 3 relapses in the past 12 months (at least 1 ",p:6,x:564,y:926,w:603,h:19},
{t:"relapse in the preceding 6 months). ",p:6,x:564,y:947,w:356,h:19},
{t:"•",p:6,x:527,y:966,w:11,h:32},
{t:"The patient must be at least 18 years old.",p:6,x:564,y:978,w:382,h:19},
{t:"If you are interested in this study and would like to hear ",p:6,x:489,y:1036,w:668,h:23},
{t:"more about it, please contact the investigators at the ",p:6,x:489,y:1065,w:633,h:23},
{t:"following locations.",p:6,x:489,y:1094,w:233,h:23},
{t:"Mayo Clinic - Arizona    Principal Investigator: Dean M. Wingerchuk, M.D.  ",p:6,x:489,y:1146,w:676,h:21},
{t:"Contact: Irene Galasky             480-342-6104     ",p:6,x:489,y:1171,w:490,h:21},
{t:"galasky.irene@mayo.edu     ",p:6,x:489,y:1196,w:289,h:21},
{t:"Mayo Clinic - Minnesota    Principal Investigator: Sean J. Pittock, M.D. ",p:6,x:489,y:1246,w:651,h:21},
{t:"Contact: Karen Brekke          507-538-3761  ",p:6,x:489,y:1273,w:477,h:23},
{t:"brekke.karen@mayo.edu",p:6,x:489,y:1302,w:279,h:23},
{t:"Contact: Connie Brekke        507-266-3196",p:6,x:489,y:1361,w:462,h:23},
{t:"brekke.connie@mayo.edu ",p:6,x:489,y:1390,w:297,h:23},
{t:"See   http://clinicaltrials.gov/ct2/show/NCT00904826 ",p:6,x:493,y:1451,w:672,h:25},
{t:"for more information",p:6,x:692,y:1482,w:266,h:25},
{t:"Healthy Living, Continued from page 4.",p:6,x:95,y:980,w:298,h:16},
{t:"The human body is an orchestra, and the ",p:6,x:95,y:1001,w:348,h:16},
{t:"organs and glands are instruments in that ",p:6,x:95,y:1022,w:348,h:16},
{t:"orchestra. Some are in tune and some are out ",p:6,x:95,y:1043,w:348,h:16},
{t:"of ",p:6,x:95,y:1064,w:19,h:16},
{t:"tune. ",p:6,x:122,y:1064,w:40,h:16},
{t:"In order to get the music ",p:6,x:171,y:1064,w:221,h:16},
{t:"right, ",p:6,x:399,y:1064,w:44,h:16},
{t:"everything must be in tune.",p:6,x:95,y:1085,w:204,h:16},
{t:"As an example, let's look at the emotion of ",p:6,x:95,y:1126,w:348,h:16},
{t:"Anger. ",p:6,x:95,y:1147,w:58,h:16},
{t:"In ",p:6,x:163,y:1147,w:22,h:16},
{t:"Chinese ",p:6,x:194,y:1147,w:68,h:16},
{t:"Medicine, ",p:6,x:272,y:1147,w:86,h:16},
{t:"anger ",p:6,x:368,y:1147,w:49,h:16},
{t:"is ",p:6,x:426,y:1147,w:17,h:16},
{t:"associated with an imbalance of ",p:6,x:95,y:1168,w:250,h:16},
{t:"the liver. If ",p:6,x:352,y:1168,w:92,h:16},
{t:"one was to do a liver scan in order to evaluate ",p:6,x:95,y:1189,w:349,h:16},
{t:"this person's physical liver, it would be normal. ",p:6,x:95,y:1210,w:349,h:16},
{t:"If ",p:6,x:95,y:1230,w:15,h:16},
{t:"you ",p:6,x:121,y:1230,w:32,h:16},
{t:"drew blood ",p:6,x:163,y:1230,w:97,h:16},
{t:"tests, ",p:6,x:269,y:1230,w:41,h:16},
{t:"looking ",p:6,x:320,y:1230,w:61,h:16},
{t:"at ",p:6,x:390,y:1230,w:18,h:16},
{t:"the ",p:6,x:417,y:1230,w:27,h:16},
{t:"chemical liver (ALT, AST, GGTP), they would ",p:6,x:95,y:1251,w:349,h:16},
{t:"also be normal. That anger would manifest in ",p:6,x:95,y:1272,w:349,h:16},
{t:"certain clinical symptoms such as insomnia, ",p:6,x:95,y:1293,w:349,h:16},
{t:"with that person likely to awaken between 1 ",p:6,x:95,y:1314,w:348,h:16},
{t:"and ",p:6,x:95,y:1335,w:31,h:16},
{t:"3 ",p:6,x:136,y:1335,w:14,h:16},
{t:"a.m. ",p:6,x:159,y:1335,w:35,h:16},
{t:"Or, ",p:6,x:204,y:1335,w:27,h:16},
{t:"the ",p:6,x:241,y:1335,w:27,h:16},
{t:"angry ",p:6,x:278,y:1335,w:47,h:16},
{t:"person ",p:6,x:333,y:1335,w:54,h:16},
{t:"might ",p:6,x:396,y:1335,w:47,h:16},
{t:"complain of headaches or migraines, another ",p:6,x:95,y:1355,w:349,h:16},
{t:"indicator ",p:6,x:95,y:1376,w:73,h:16},
{t:"of ",p:6,x:178,y:1376,w:18,h:16},
{t:"liver ",p:6,x:207,y:1376,w:40,h:16},
{t:"energy ",p:6,x:256,y:1376,w:58,h:16},
{t:"imbalance. ",p:6,x:322,y:1376,w:88,h:16},
{t:"To ",p:6,x:419,y:1376,w:24,h:16},
{t:"summarize, energy medicine would conclude ",p:6,x:95,y:1397,w:349,h:16},
{t:"that the emotion of anger has an effect on the ",p:6,x:95,y:1418,w:349,h:16},
{t:"energy of the liver, manifesting in symptoms ",p:6,x:95,y:1439,w:349,h:16},
{t:"such as headache or insomnia. Just as the ",p:6,x:95,y:1460,w:348,h:16},
{t:"electrical QRS complex of an EKG precedes ",p:6,x:95,y:1480,w:348,h:16},
{t:"the physical heartbeat, so do electrical (or ",p:6,x:95,y:1501,w:349,h:16},
{t:"energetic) ",p:6,x:95,y:1522,w:77,h:16},
{t:"changes ",p:6,x:182,y:1522,w:65,h:16},
{t:"in ",p:6,x:255,y:1522,w:19,h:16},
{t:"the ",p:6,x:283,y:1522,w:27,h:16},
{t:"organs ",p:6,x:320,y:1522,w:53,h:16},
{t:"precede ",p:6,x:382,y:1522,w:62,h:16},
{t:"chemical and physical abnormalities.",p:6,x:95,y:1543,w:270,h:16},
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