var g_txt=[
{t:"“I’m not alone anymore, ” was echoed ",p:1,x:95,y:874,w:328,h:25},
{t:"across the room by patients attending ",p:1,x:95,y:897,w:315,h:23},
{t:"the Guthy-Jackson Charitable ",p:1,x:95,y:918,w:252,h:23},
{t:"Foundation (GJCF) Patient Session ",p:1,x:95,y:936,w:299,h:23},
{t:"dedicated to NMO patients and ",p:1,x:95,y:957,w:265,h:23},
{t:"caregivers. For the first time in history, ",p:1,x:95,y:978,w:330,h:23},
{t:"a session solely dedicated to people ",p:1,x:95,y:999,w:301,h:23},
{t:"with Neuromyelitis Optica (NMO) ",p:1,x:95,y:1020,w:295,h:23},
{t:"Spectrum Disease was held in Los ",p:1,x:95,y:1041,w:291,h:23},
{t:"Angeles, CA, on Nov. 11, 2009.  ",p:1,x:95,y:1061,w:276,h:23},
{t:"Dedicated to ",p:1,x:296,y:1103,w:111,h:23},
{t:"taking “A ",p:1,x:296,y:1124,w:85,h:23},
{t:"Rare ",p:1,x:296,y:1143,w:44,h:23},
{t:"Approach to a ",p:1,x:296,y:1163,w:123,h:23},
{t:"Rare Disease”  ",p:1,x:296,y:1184,w:130,h:23},
{t:"GJCF hosted ",p:1,x:296,y:1205,w:113,h:23},
{t:"the “Living ",p:1,x:296,y:1226,w:100,h:23},
{t:"with NMO” ",p:1,x:296,y:1247,w:105,h:23},
{t:"Patient ",p:1,x:296,y:1268,w:63,h:23},
{t:"Session as part ",p:1,x:296,y:1288,w:130,h:23},
{t:"of the ",p:1,x:296,y:1309,w:53,h:23},
{t:"Foundation’s second annual NMO ",p:1,x:95,y:1330,w:291,h:23},
{t:"Roundtable Conference. Leading ",p:1,x:95,y:1349,w:281,h:23},
{t:"NMO scientists and clinicians from all ",p:1,x:95,y:1370,w:328,h:23},
{t:"over the world convened to further ",p:1,x:95,y:1391,w:295,h:23},
{t:"NMO research collaboration at The ",p:1,x:95,y:1411,w:300,h:23},
{t:"Tower Beverly Hills on Nov. 9 – 11, ",p:1,x:475,y:874,w:307,h:23},
{t:"2009.",p:1,x:475,y:895,w:46,h:23},
{t:"The day-long NMO Patient ",p:1,x:549,y:916,w:233,h:23},
{t:"Session offered patients and caregivers ",p:1,x:475,y:936,w:330,h:23},
{t:"a rare chance to meet and talk with ",p:1,x:475,y:955,w:296,h:23},
{t:"others who live with NMO.  During a ",p:1,x:475,y:976,w:318,h:23},
{t:"highly-anticipated Panel Discussion, ",p:1,x:475,y:997,w:310,h:23},
{t:"where nine panelists responded to ",p:1,x:475,y:1018,w:287,h:23},
{t:"questions from members of the ",p:1,x:475,y:1038,w:264,h:23},
{t:"audience, everyone had an opportunity ",p:1,x:475,y:1059,w:328,h:23},
{t:"to ask questions and receive informed ",p:1,x:475,y:1080,w:320,h:23},
{t:"responses.  Panelists included the ",p:1,x:475,y:1101,w:283,h:23},
{t:"Founder of GJCF, Victoria Jackson, as ",p:1,x:475,y:1122,w:326,h:23},
{t:"well as leading NMO clinicians, ",p:1,x:475,y:1143,w:274,h:23},
{t:"alternative medicine practitioners, and ",p:1,x:475,y:1161,w:324,h:23},
{t:"researchers from the Mayo Clinic, the ",p:1,x:475,y:1182,w:321,h:23},
{t:"University California at San ",p:1,x:475,y:1203,w:239,h:23},
{t:"Francisco, the Colorado Neurological ",p:1,x:475,y:1224,w:318,h:23},
{t:"Institute and others.",p:1,x:475,y:1245,w:164,h:23},
{t:"As the daytime sun faded into ",p:1,x:548,y:1266,w:254,h:23},
{t:"evening, members of the audience ",p:1,x:475,y:1286,w:290,h:23},
{t:"asked questions one-by-one regarding ",p:1,x:475,y:1307,w:321,h:23},
{t:"their personal NMO experiences.  ",p:1,x:475,y:1328,w:286,h:23},
{t:"Questions from a mixed audience of ",p:1,x:475,y:1349,w:307,h:23},
{t:"nearly 130 people were addressed as ",p:1,x:475,y:1368,w:310,h:23},
{t:"panel members provided extensive ",p:1,x:475,y:1388,w:295,h:23},
{t:"answers, giving NMO patients what ",p:1,x:475,y:1409,w:305,h:23},
{t:"they have sorely lacked: personal ",p:1,x:856,y:874,w:282,h:23},
{t:"attention and time with NMO experts.   ",p:1,x:856,y:895,w:332,h:23},
{t:"“The Guthy-Jackson ",p:1,x:931,y:916,w:177,h:23},
{t:"Foundation sponsored NMO ",p:1,x:856,y:936,w:243,h:23},
{t:"conference was outstanding,” said ",p:1,x:856,y:955,w:289,h:23},
{t:"NMO clinician and panelist, Dr. ",p:1,x:856,y:976,w:272,h:23},
{t:"Benjamin Greenberg who works at the ",p:1,x:856,y:997,w:326,h:23},
{t:"University of Texas Southwestern ",p:1,x:856,y:1018,w:287,h:23},
{t:"Medical Center in Dallas, TX.  ",p:1,x:856,y:1038,w:262,h:23},
{t:"“Beyond the exciting science was the ",p:1,x:856,y:1059,w:317,h:23},
{t:"quite motivating patient question/",p:1,x:856,y:1080,w:280,h:23},
{t:"answer session. Seeing the many ",p:1,x:856,y:1101,w:278,h:23},
{t:"varied faces and hearing the many ",p:1,x:856,y:1122,w:290,h:23},
{t:"stories of NMO were inspiring.  So ",p:1,x:856,y:1143,w:298,h:23},
{t:"many people have been facing this ",p:1,x:856,y:1161,w:293,h:23},
{t:"disease with courage and now they ",p:1,x:856,y:1182,w:296,h:23},
{t:"have a forum in which to work ",p:1,x:856,y:1203,w:262,h:23},
{t:"together. It’s outstanding,” Greenberg ",p:1,x:856,y:1224,w:318,h:23},
{t:"said.",p:1,x:856,y:1245,w:38,h:23},
{t:"Over 50 people affected by ",p:1,x:931,y:1268,w:231,h:23},
{t:"NMO including caretakers, family and ",p:1,x:856,y:1288,w:328,h:23},
{t:"friends attended the Patient Session.  ",p:1,x:856,y:1309,w:311,h:23},
{t:"Many traveled across the United ",p:1,x:856,y:1330,w:275,h:23},
{t:"States to reach Los Angeles to ",p:1,x:856,y:1349,w:256,h:23},
{t:"participate in the session, during ",p:1,x:856,y:1370,w:275,h:23},
{t:"which they found vindication and a ",p:1,x:856,y:1391,w:299,h:23},
{t:"sense of recognition as their voices ",p:1,x:856,y:1411,w:297,h:23},
{t:"were heard.  Continued on page 7",p:1,x:856,y:1432,w:281,h:23},
{t:"WINTER 2010 - CONFERENCE EDITION	",p:1,x:72,y:212,w:322,h:19},
{t:"        	",p:1,x:581,y:212,w:37,h:19},
{t:"                                                      NEWSLETTER - VOLUME  TWO",p:1,x:715,y:212,w:482,h:19},
{t:"“Why NMO Matters” ",p:1,x:296,y:1484,w:210,h:26},
{t:"by GJCF Founder ",p:1,x:316,y:1507,w:170,h:26},
{t:"Victoria Jackson, Page 2",p:1,x:287,y:1528,w:222,h:26},
{t:"JOIN OUR COMMUNITY",p:1,x:706,y:1482,w:265,h:24},
{t:"SPECTRUM - The GJCF Online ",p:1,x:706,y:1506,w:262,h:23},
{t:"Community Website - Page 7",p:1,x:706,y:1529,w:240,h:23},
{t:"LETTER FROM ",p:1,x:96,y:1480,w:164,h:22},
{t:"THE EDITOR  ",p:1,x:107,y:1503,w:150,h:22},
{t:"PAGE 3",p:1,x:136,y:1526,w:79,h:22},
{t:"WWW.GUTHYJACKSONFOUNDA",p:1,x:444,y:1577,w:300,h:22},
{t:"TION.ORG",p:1,x:778,y:1577,w:93,h:22},
{t:"The SPECTRUM",p:1,x:406,y:95,w:738,h:114},
{t:"“I	could	go	on	and	on,	but	",p:1,x:872,y:309,w:313,h:35},
{t:"this	conference	was	just	",p:1,x:872,y:345,w:290,h:35},
{t:"the	beginning	of	the	hope	",p:1,x:872,y:380,w:313,h:35},
{t:"we	have	that	is	spreading	",p:1,x:872,y:415,w:307,h:35},
{t:"amongst	us….We	no	",p:1,x:872,y:451,w:244,h:35},
{t:"longer	have	to	feel	alone	",p:1,x:872,y:486,w:299,h:35},
{t:"and	we	know	that	",p:1,x:872,y:522,w:219,h:35},
{t:"research	has	been	fast-",p:1,x:872,y:557,w:272,h:35},
{t:"tracked	and	wow,	how	",p:1,x:872,y:593,w:271,h:35},
{t:"exci@ng!”",p:1,x:872,y:628,w:112,h:35},
{t:"						-	Kendall,	NMO	Pa.ent",p:1,x:872,y:699,w:309,h:35},
{t:"The Guthy-Jackson Charitable Foundation’s 2nd Annual Conference for NMO, 2009",p:1,x:145,y:693,w:640,h:21},
{t:"The Guthy-Jackson Charitable Foundation’s 2009 ",p:1,x:265,y:772,w:756,h:42},
{t:"NMO Roundtable Conference and NMO Patient Session",p:1,x:206,y:820,w:866,h:42},
{t:"WWW.GUTHYJACKSONFOUNDA",p:2,x:417,y:1583,w:300,h:22},
{t:"TION.ORG",p:2,x:751,y:1583,w:93,h:22},
{t:"2",p:2,x:79,y:1583,w:11,h:26},
{t:"Mayo	Clinic	Neurologist	Reports:	",p:2,x:588,y:972,w:459,h:40},
{t:"“Thousands	of	NMO	Pa<lt;ents	are	Misdiagnosed	with	",p:2,x:452,y:1012,w:731,h:40},
{t:"Mul<lt;ple	Sclerosis”	",p:2,x:685,y:1051,w:265,h:40},
{t:"Groundbreaking	Conference	for	Rare	Neurological	Disease	–	Neuromyeli.s	Op.ca	(NMO)	–	Brings	",p:2,x:445,y:1092,w:742,h:22},
{t:"Together	World’s	Top	Doctors,	Medical	Researchers	and	Pa.ents	in	Pursuit	of	a	Cure	",p:2,x:497,y:1115,w:637,h:22},
{t:"Los	Angeles	(Nov.	11,	2009)	—	Thousands	of	Neuromyeli@s	Op@ca	(NMO)	pa@ents	are	poten@ally	being	",p:2,x:410,y:1165,w:786,h:22},
{t:"misdiagnosed	with	Mul@ple	Sclerosis	(MS),	according	to	Mayo	Clinic	Neurologist	Sean	PiTock,	M.D.,	",p:2,x:410,y:1188,w:760,h:22},
{t:"largely	due	to	lack	of	awareness	of	NMO	within	the	medical	community.		Dr.	PiTock	shared	this	finding	",p:2,x:410,y:1211,w:781,h:22},
{t:"with	more	than	50	of	the	world’s	leading	doctors	and	medical	researchers	–	from	Harvard	to	Oxford	–	who	",p:2,x:410,y:1234,w:810,h:22},
{t:"gathered	at	the	2009	NMO	Roundtable	Conference,	sponsored	by	the	Guthy-Jackson	Charitable	",p:2,x:410,y:1257,w:728,h:22},
{t:"Founda@on.	",p:2,x:410,y:1280,w:95,h:22},
{t:"NMO	is	a	rare	and	debilita@ng	disease	that	aTacks	the	op@c	nerves	and	spinal	cord,	o_en	causing	vision	",p:2,x:410,y:1325,w:791,h:22},
{t:"loss,	paralysis	of	legs	and	arms,	and	sensory	disturbances.		The	Guthy-Jackson	Charitable	Founda@on	has	",p:2,x:410,y:1348,w:797,h:22},
{t:"brought	together	these	researchers	to	help	find	a	cure	for	this	rare	disease.",p:2,x:410,y:1371,w:570,h:22},
{t:"Dr.	PiTock	came	to	his	conclusion	based	on	ongoing	research	at	the	Mayo	Clinic.	Of	the	1,200	blood	",p:2,x:410,y:1417,w:759,h:22},
{t:"samples	that	are	sent	to	Mayo	Clinic’s	neuroimmunology	laboratory	for	NMO	an@body	(NMO-IgG)	tes@ng	",p:2,x:410,y:1440,w:804,h:22},
{t:"each	month,	approximately	70	new	pa@ents	test	posi@ve	for	NMO,	which	is	surprisingly	high	considering	it	",p:2,x:410,y:1463,w:812,h:22},
{t:"is	believed	to	be	a	rare	disease.		Of	the	70	pa@ents	who	have	the	NMO	an@body,	Dr.	PiTock	has	found	that	",p:2,x:410,y:1486,w:810,h:22},
{t:"a	majority	were	previously	thought	to	have	MS.",p:2,x:410,y:1509,w:360,h:22},
{t:"To read the full article please visit www.guthyjacksonfoundation.org",p:2,x:410,y:1553,w:454,h:18},
{t:"Why NMO Matters ",p:2,x:485,y:102,w:318,h:37},
{t:"by Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation	",p:2,x:226,y:138,w:831,h:29},
{t:"A	year	ago,	my	16	year-old	daughter	was	diagnosed	with	a	rare	disease	",p:2,x:519,y:226,w:632,h:24},
{t:"called	NMO	(Neuromyelitis	Optica).	NMO	is	what	they	call	an	“orphan	",p:2,x:519,y:246,w:618,h:24},
{t:"disease”—meaning,	not	enough	people	have	it	to	justify	the	time,	money	",p:2,x:519,y:269,w:643,h:24},
{t:"and	energy	required	to	effect	a	cure.	Last	year,	my	husband	Bill	and	I	",p:2,x:520,y:292,w:609,h:24},
{t:"created	a	Foundation	to	give	grants	to	doctors	and	researchers—and	",p:2,x:520,y:315,w:611,h:24},
{t:"bring	those	“orphans”	together.",p:2,x:520,y:338,w:277,h:24},
{t:"I	knew	it	would	be	tough	to	get	the	world	to	care	about	an	illness	that	so	",p:2,x:520,y:382,w:642,h:24},
{t:"few	of	us	have.	Most	people	are	too	kind	to	say	that	in	so	many	words,	",p:2,x:520,y:405,w:620,h:24},
{t:"but	I’d	like	to	tell	you	why	NMO	matters.	Why	caring	about	Rare	Orphan	",p:2,x:520,y:428,w:640,h:24},
{t:"Diseases	matters.	",p:2,x:520,y:451,w:159,h:24},
{t:"That’s	the	question	I	always	want	to	be	asked	Qirst.	Because	it	would	",p:2,x:520,y:494,w:605,h:24},
{t:"probably	be	the	question	I’d	ask.	I’ll	answer	with	another	question:	What	",p:2,x:520,y:517,w:646,h:24},
{t:"are	the	requirements	of	compassion?	In	the	Not-So-Golden	Age	of	reality	",p:2,x:520,y:540,w:634,h:24},
{t:"shows	and	the	24-hour	news	cycle,	what	does	it	take	to	get	our	",p:2,x:520,y:563,w:559,h:24},
{t:"attention?	A	police	chase?	Genocide?	",p:2,x:520,y:584,w:329,h:24},
{t:"Celebrity	scandal?	I	think	what	it	comes	",p:2,x:520,y:607,w:357,h:24},
{t:"down	to	is	the	quality	of	the	attention	we	choose	to	give	that	deQines	our	humanity,	our	",p:2,x:112,y:630,w:770,h:24},
{t:"“tribe. ”	Look,	I’m	a	mom.	When	my	daughter	was	diagnosed	with	NMO,	I	did	what	any	",p:2,x:112,y:653,w:759,h:24},
{t:"mom	would	do:	after	the	tears,	I	went	into	battle	mode.	But	unlike	most	moms	out	there,	I	",p:2,x:112,y:676,w:792,h:24},
{t:"had	the	resources	to	build	an	army,	and	create	a	Foundation.	",p:2,x:112,y:696,w:537,h:24},
{t:"If	you	asked,	would	curing	NMO	help	unlock	the	cure	for	other	diseases,	like	MS?	",p:2,x:112,y:742,w:715,h:24},
{t:"Probably.	But	let’s	take	NMO	and	MS	out	of	it—and	ask	the	question	again.	Why	should	we	",p:2,x:112,y:765,w:796,h:24},
{t:"care?	The	answer	simply	is,	“Because	caring	is	the	best	part	of	us. ”	Don’t	get	me	wrong,	",p:2,x:112,y:788,w:769,h:24},
{t:"I’m	on	a	mission.	I	will	save	my	daughter.	But	it’s	become	much	bigger	than	that.	Through	",p:2,x:112,y:809,w:791,h:24},
{t:"the	Guthy-Jackson	Foundation,	I’ve	adopted	a	lot	of	orphans.	I	have	a	whole	new	family—",p:2,x:112,y:832,w:786,h:24},
{t:"dads	and	daughters,	moms	and	sons.	That	was	something	I	could	never	have	imagined,	",p:2,x:112,y:855,w:770,h:24},
{t:"and	it	has	Qilled	my	heart.	So:	Why	should	we	care?	Because	caring	>gt;ills	the	heart	and	soul,	",p:2,x:112,y:878,w:788,h:24},
{t:"and	is	the	very	best	part	of	who	we	are—and	who	we	can	be.	",p:2,x:112,y:901,w:525,h:24},
{t:"	",p:2,x:112,y:921,w:4,h:24},
{t:"	",p:2,x:187,y:921,w:4,h:24},
{t:"	",p:2,x:262,y:921,w:4,h:24},
{t:"	",p:2,x:337,y:921,w:4,h:24},
{t:"	",p:2,x:412,y:921,w:4,h:24},
{t:"	",p:2,x:487,y:921,w:4,h:24},
{t:"	",p:2,x:562,y:921,w:4,h:24},
{t:"	",p:2,x:637,y:921,w:4,h:24},
{t:"—Victoria	Jackson",p:2,x:712,y:921,w:159,h:24},
{t:"Dear	Friends,",p:3,x:102,y:261,w:154,h:31},
{t:"2009	was	a	great	year.	Now	I	don’t	mean	to	brag,	but	",p:3,x:102,y:318,w:608,h:31},
{t:"I	got	straight	A ’s	on	my	report	card	(junior	year	in	",p:3,x:102,y:347,w:577,h:31},
{t:"high	school…not	too	shabby),	I	became	captain	of	my	",p:3,x:102,y:374,w:616,h:31},
{t:"tennis	team	(co-captain,	and	for	next	season,	but	",p:3,x:102,y:403,w:564,h:31},
{t:"still)	and,	to	top	it	all	off,	(I	know	this	is	going	to	",p:3,x:102,y:430,w:555,h:31},
{t:"sound	",p:3,x:459,y:459,w:77,h:31},
{t:"cheesy	like	the	bulk	of	my	last	letter,	but	stay	with	me	on	",p:3,x:460,y:486,w:655,h:31},
{t:"this)	I	discovered	a	new	awareness,	a	different	",p:3,x:460,y:515,w:538,h:31},
{t:"perspective	of	myself	I	had	never	noticed	before.	",p:3,x:460,y:543,w:563,h:31},
{t:"The	Symposium	in	November	really	opened	my	eyes	to	a	",p:3,x:460,y:599,w:656,h:31},
{t:"community	I	was	previously	ignorant	to	associate	myself	",p:3,x:460,y:628,w:658,h:31},
{t:"with.	The	amount	of	love	and	support	I	felt	from	every	",p:3,x:460,y:655,w:628,h:31},
{t:"individual	at	that	conference	was	truly	awe-inspiring	and	",p:3,x:460,y:684,w:664,h:31},
{t:"gave	me	an	even	better	outlook	for	this	whole	thing	we’ve	",p:3,x:460,y:711,w:669,h:31},
{t:"all	come	to	know	as	NMO.	Strangers.	People	I	had	never	met	",p:3,x:460,y:740,w:693,h:31},
{t:"before	had	heard	of	me,	wanted	to	meet	me,	or	were	",p:3,x:460,y:768,w:606,h:31},
{t:"somehow	linked	to	me	in	this	bizarre	and	funny	chain	of	",p:3,x:460,y:797,w:652,h:31},
{t:"fate	we	are	creating.	We	joined	together	to	form	one	",p:3,x:460,y:824,w:603,h:31},
{t:"perfect,	uniQied	bond	that	was	not	once	broken	throughout	",p:3,x:460,y:853,w:680,h:31},
{t:"our	entire	time	together.	For	those	of	you	who	couldn’t	",p:3,x:460,y:880,w:633,h:31},
{t:"attend,	for	whatever	reason,	good	or	bad,	I	strongly	",p:3,x:460,y:909,w:594,h:31},
{t:"recommend	attending	in	the	future.	I	am	not	a	fan	of	",p:3,x:460,y:936,w:607,h:31},
{t:"science	and	dread	going	to	Chemistry	on	a	daily	basis	(no	",p:3,x:460,y:965,w:664,h:31},
{t:"offense	Mr.	Kelleher),	but	the	patient	day	wasn’t	about	the	",p:3,x:460,y:993,w:671,h:31},
{t:"science.		It	was	about	connecting	with	people	just	like	me,	",p:3,x:460,y:1022,w:669,h:31},
{t:"dealing	with	what	I’m	dealing	with	and	even	feeling	what	",p:3,x:460,y:1049,w:663,h:31},
{t:"I’m	feeling.	No	one	else	can	relate	to	me	the	way	they	can.	",p:3,x:460,y:1078,w:665,h:31},
{t:"I	guess	that	was	my	highlight	of	2009,	believe	it	or	not,	because	this	“disease”	has	really	",p:3,x:102,y:1134,w:1009,h:31},
{t:"been	a,	not	exactly	fun,	but	revealing	experience.	I’ve	discovered	how	many	people	care	",p:3,x:102,y:1161,w:1007,h:31},
{t:"about	me	and	how	profoundly	I	care	for	them.	We	are	a	small	group,	but	a	mighty	one.	We	",p:3,x:102,y:1190,w:1035,h:31},
{t:"all	create	a	collective	unit,	and	together,	we	will	become	known	as	the	little	community	",p:3,x:102,y:1218,w:1002,h:31},
{t:"that	could,	can,	and	will.",p:3,x:102,y:1247,w:277,h:31},
{t:"Yours	Truly,",p:3,x:102,y:1303,w:136,h:31},
{t:"Ali	Guthy		",p:3,x:102,y:1330,w:118,h:31},
{t:"3",p:3,x:1195,y:1583,w:11,h:26},
{t:"Letter from Ali Guthy ,     ",p:3,x:113,y:91,w:584,h:71},
{t:"Editor in Chief",p:3,x:206,y:139,w:377,h:71},
{t:"“The 2009 NMO Patient ",p:3,x:60,y:517,w:340,h:34},
{t:"Session was really a ",p:3,x:60,y:553,w:289,h:34},
{t:"great experience for me ",p:3,x:60,y:588,w:348,h:34},
{t:"on every level - personal ",p:3,x:60,y:623,w:352,h:34},
{t:"and professional - and I ",p:3,x:60,y:659,w:342,h:34},
{t:"came away with feeling ",p:3,x:60,y:694,w:337,h:34},
{t:"so fortunate to be part ",p:3,x:60,y:730,w:330,h:34},
{t:"of the growing NMO ",p:3,x:60,y:765,w:295,h:34},
{t:"family that the Guthy-",p:3,x:60,y:800,w:308,h:34},
{t:"Jackson Foundation ",p:3,x:60,y:836,w:286,h:34},
{t:"organization has put in ",p:3,x:60,y:871,w:338,h:34},
{t:"place.” ",p:3,x:60,y:907,w:103,h:34},
{t:"- Dr. Claudia Lucchinetti",p:3,x:60,y:998,w:343,h:34},
{t:"Photo by Mahlon",p:3,x:1064,y:388,w:74,h:14},
{t:"RECOMMENDED READING...",p:3,x:354,y:1402,w:397,h:34},
{t:"\"The Places That Scare You: ",p:3,x:368,y:1443,w:378,h:33},
{t:"A Guide to Fearlessness in Difficult Times\" ",p:3,x:276,y:1484,w:561,h:33},
{t:"by Pema Chodron ",p:3,x:434,y:1524,w:244,h:33},
{t:"Q & A about NMO ",p:4,x:328,y:97,w:412,h:57},
{t:"with Katja Van Herle, ",p:4,x:328,y:149,w:455,h:57},
{t:"M.D, M.S.P.H. ",p:4,x:328,y:201,w:182,h:33},
{t:"Donec arcu risus diam amet sit. ",p:4,x:858,y:584,w:296,h:30},
{t:"Congue tortor cursus risus ",p:4,x:858,y:613,w:241,h:30},
{t:"vestibulum commodo nisl, luctus ",p:4,x:858,y:642,w:300,h:30},
{t:"augue amet quis aenean ",p:4,x:858,y:671,w:222,h:30},
{t:"maecenas sit, donec velit iusto, ",p:4,x:858,y:700,w:282,h:30},
{t:"morbi felis elit et nibh. ",p:4,x:858,y:729,w:212,h:30},
{t:"Vestibulum volutpat dui lacus ",p:4,x:858,y:759,w:277,h:30},
{t:"consectetuer, mauris at ",p:4,x:858,y:788,w:209,h:30},
{t:"suspendisse, eu wisi rhoncus eget ",p:4,x:858,y:817,w:304,h:30},
{t:"nibh velit, eget posuere sem in a ",p:4,x:858,y:846,w:293,h:30},
{t:"sit. Sociosqu netus semper ",p:4,x:858,y:875,w:241,h:30},
{t:"aenean suspendisse dictum, arcu ",p:4,x:858,y:904,w:299,h:30},
{t:"enim conubia leo nulla ac.",p:4,x:858,y:934,w:238,h:30},
{t:"Montes et metus adipiscing ",p:4,x:858,y:963,w:253,h:30},
{t:"placerat consectetuer nunc.",p:4,x:858,y:992,w:238,h:30},
{t:"Dr. Van Herle; Clinical Faculty, ",p:4,x:99,y:336,w:257,h:20},
{t:"Endocrinology and Internal Medicine at ",p:4,x:99,y:355,w:330,h:20},
{t:"the David Geffen University of ",p:4,x:99,y:374,w:254,h:20},
{t:"California, Los Angeles (UCLA) School ",p:4,x:99,y:393,w:328,h:20},
{t:"of Medicine",p:4,x:99,y:411,w:95,h:20},
{t:"Q: Why is NMO called an ",p:4,x:99,y:449,w:226,h:20},
{t:"autoimmune disease?",p:4,x:99,y:468,w:196,h:20},
{t:"A: Autoimmune diseases are defined ",p:4,x:99,y:505,w:310,h:20},
{t:"by the body “attacking” itself.  In ",p:4,x:99,y:524,w:269,h:20},
{t:"neuromyelitis optica, the body starts ",p:4,x:99,y:543,w:304,h:20},
{t:"making proteins against specific parts ",p:4,x:99,y:561,w:317,h:20},
{t:"of the optic nerve and/or the spinal ",p:4,x:99,y:580,w:292,h:20},
{t:"cord.  Unfortunately, if the attack on ",p:4,x:99,y:599,w:299,h:20},
{t:"“self” is strong enough, the optic nerve ",p:4,x:99,y:618,w:324,h:20},
{t:"and spinal cord become damaged, ",p:4,x:99,y:636,w:292,h:20},
{t:"leading to loss of vision, and/or ",p:4,x:99,y:655,w:262,h:20},
{t:"movement.  Why the body attacks itself ",p:4,x:99,y:674,w:334,h:20},
{t:"is not clear.  There could be genetic, ",p:4,x:99,y:693,w:306,h:20},
{t:"environmental, hormonal or other ",p:4,x:99,y:711,w:281,h:20},
{t:"factors involved that alter the immune ",p:4,x:99,y:730,w:316,h:20},
{t:"system in a negative way.  Like ",p:4,x:99,y:749,w:263,h:20},
{t:"rheumatoid arthritis and lupus, typical ",p:4,x:99,y:768,w:315,h:20},
{t:"NMO is also an autoimmune disease, ",p:4,x:99,y:786,w:316,h:20},
{t:"though it is a rare form of ",p:4,x:99,y:805,w:213,h:20},
{t:"neurodegenerative autoimmunity.  ",p:4,x:99,y:824,w:287,h:20},
{t:"Q: How can diet and exercise/",p:4,x:99,y:880,w:265,h:20},
{t:"lifestyle make a difference in NMO?",p:4,x:99,y:899,w:315,h:20},
{t:"A: Since NMO is an autoimmune ",p:4,x:99,y:936,w:277,h:20},
{t:"disease and we know that problems ",p:4,x:99,y:955,w:303,h:20},
{t:"with the immune system can lead to ",p:4,x:99,y:974,w:303,h:20},
{t:"this, then it is important to keep the ",p:4,x:99,y:993,w:295,h:20},
{t:"immune system as “healthy” as ",p:4,x:99,y:1011,w:264,h:20},
{t:"possible.  In this regard, it is known ",p:4,x:99,y:1030,w:297,h:20},
{t:"that diet and exercise are key in ",p:4,x:99,y:1049,w:269,h:20},
{t:"keeping our immune system strong.  In ",p:4,x:99,y:1068,w:328,h:20},
{t:"terms of diet, low-fat, gluten-free food ",p:4,x:99,y:1086,w:315,h:20},
{t:"plans with plenty of water and fresh ",p:4,x:99,y:1105,w:299,h:20},
{t:"fruits and vegetables are important.  ",p:4,x:99,y:1124,w:304,h:20},
{t:"Foods with antioxidant values may ",p:4,x:99,y:1143,w:291,h:20},
{t:"help also to lower “inflammation” and ",p:4,x:99,y:1161,w:311,h:20},
{t:"possibly keep the immune system ",p:4,x:99,y:1180,w:286,h:20},
{t:"healthier.",p:4,x:99,y:1199,w:76,h:20},
{t:"Q: If just diagnosed how do I go ",p:4,x:99,y:1236,w:289,h:20},
{t:"forward?",p:4,x:99,y:1255,w:80,h:20},
{t:"A: First of all, know that you are not ",p:4,x:99,y:1293,w:299,h:20},
{t:"alone.  While NMO is a rare disease, ",p:4,x:99,y:1311,w:310,h:20},
{t:"there are multiple places in the U.S. ",p:4,x:99,y:1330,w:302,h:20},
{t:"and internationally with NMO centers ",p:4,x:99,y:1349,w:311,h:20},
{t:"to help in clinical care.  One purpose of ",p:4,x:99,y:1368,w:332,h:20},
{t:"The Guthy-Jackson Charitable ",p:4,x:99,y:1386,w:258,h:20},
{t:"Foundation is to open the information ",p:4,x:99,y:1405,w:314,h:20},
{t:"doors  to help all patients with NMO ",p:4,x:99,y:1424,w:301,h:20},
{t:"and their families by joining Spectrum, ",p:4,x:99,y:1443,w:322,h:20},
{t:"the Foundation’s online social ",p:4,x:99,y:1461,w:251,h:20},
{t:"networking website: ",p:4,x:99,y:1480,w:169,h:20},
{t:"www.spectrum.guthyjacksonfoundation",p:4,x:99,y:1499,w:324,h:20},
{t:".org ",p:4,x:99,y:1518,w:37,h:20},
{t:"The Foundation is also creating ",p:4,x:485,y:334,w:266,h:20},
{t:"online maps/lists of NMO clinicians ",p:4,x:485,y:353,w:294,h:20},
{t:"around the world.  You can locate ",p:4,x:485,y:372,w:282,h:20},
{t:"clinicians, NMO centers and the ",p:4,x:485,y:390,w:269,h:20},
{t:"latest and best information about ",p:4,x:485,y:409,w:277,h:20},
{t:"NMO.  Please visit: http://",p:4,x:485,y:428,w:211,h:20},
{t:"www.guthyjacksonfoundation.org/",p:4,x:485,y:447,w:279,h:20},
{t:"resources.nmo.maps.php to see the ",p:4,x:485,y:465,w:305,h:20},
{t:"online maps locating NMO clinicians ",p:4,x:485,y:484,w:307,h:20},
{t:"and add your NMO doctor to the ",p:4,x:485,y:503,w:273,h:20},
{t:"map.  ",p:4,x:485,y:522,w:52,h:20},
{t:"Q: What does it mean that NMO is ",p:4,x:485,y:578,w:307,h:20},
{t:"an “orphan disease”? ",p:4,x:485,y:597,w:200,h:20},
{t:"A: The term “orphan disease” ",p:4,x:485,y:634,w:248,h:20},
{t:"applies to rare diseases that don’t ",p:4,x:485,y:653,w:285,h:20},
{t:"have a cure, affect only a small ",p:4,x:485,y:672,w:263,h:20},
{t:"number of patients and those that ",p:4,x:485,y:690,w:284,h:20},
{t:"don’t have large amounts of funding ",p:4,x:485,y:709,w:303,h:20},
{t:"for clinical care or basic science ",p:4,x:485,y:728,w:269,h:20},
{t:"research.  NMO falls into this ",p:4,x:485,y:747,w:245,h:20},
{t:"category, with an estimated 4,000 ",p:4,x:485,y:765,w:284,h:20},
{t:"affected patients in the U.S. ",p:4,x:485,y:784,w:235,h:20},
{t:"However, many believe that the ",p:4,x:485,y:803,w:266,h:20},
{t:"number of patients may be much ",p:4,x:485,y:822,w:278,h:20},
{t:"greater and that “resistant” multiple ",p:4,x:485,y:840,w:295,h:20},
{t:"sclerosis patients (those who don’t ",p:4,x:485,y:859,w:291,h:20},
{t:"respond well to treatment) may in ",p:4,x:485,y:878,w:282,h:20},
{t:"fact have NMO.  The NMO-IgG ",p:4,x:485,y:897,w:263,h:20},
{t:"antibody blood test can help identify ",p:4,x:485,y:915,w:303,h:20},
{t:"these patients. ",p:4,x:485,y:934,w:127,h:20},
{t:"Q: How did I get NMO? Is it ",p:4,x:485,y:972,w:245,h:20},
{t:"contagious and/or hereditary?",p:4,x:485,y:990,w:269,h:20},
{t:"A: No one knows exactly how NMO ",p:4,x:485,y:1028,w:299,h:20},
{t:"develops.  There may be a genetic ",p:4,x:485,y:1047,w:292,h:20},
{t:"predisposition to get the disease, ",p:4,x:485,y:1065,w:279,h:20},
{t:"though so far, it is not described as ",p:4,x:485,y:1084,w:294,h:20},
{t:"a hereditary disease.  Likely, there ",p:4,x:485,y:1103,w:289,h:20},
{t:"are environmental factors that also ",p:4,x:485,y:1122,w:292,h:20},
{t:"came together to “trigger” this form ",p:4,x:485,y:1140,w:293,h:20},
{t:"of autoimmunity.  Researchers are ",p:4,x:485,y:1159,w:290,h:20},
{t:"studying these genetics and ",p:4,x:485,y:1178,w:237,h:20},
{t:"possible triggers in hopes of ",p:4,x:485,y:1197,w:238,h:20},
{t:"identifying them so that future NMO ",p:4,x:485,y:1215,w:300,h:20},
{t:"“triggers” can be avoided.  NMO is ",p:4,x:485,y:1234,w:290,h:20},
{t:"not contagious and there is no ",p:4,x:485,y:1253,w:256,h:20},
{t:"general screening recommended at ",p:4,x:485,y:1272,w:300,h:20},
{t:"this time for family members of an ",p:4,x:485,y:1290,w:286,h:20},
{t:"NMO patient.  The good news is that ",p:4,x:485,y:1309,w:309,h:20},
{t:"there is a blood test that can ",p:4,x:485,y:1328,w:240,h:20},
{t:"ordered by your clinician, the NMO-",p:4,x:485,y:1347,w:294,h:20},
{t:"IgG antibody, in suspected patients ",p:4,x:485,y:1365,w:296,h:20},
{t:"to confirm the diagnosis.  This is key ",p:4,x:485,y:1384,w:309,h:20},
{t:"as the disease can be halted in ",p:4,x:485,y:1403,w:263,h:20},
{t:"most cases with medical therapies if ",p:4,x:485,y:1422,w:309,h:20},
{t:"it is diagnosed and treated early – ",p:4,x:485,y:1440,w:286,h:20},
{t:"this seems to be critical to avoid ",p:4,x:485,y:1459,w:270,h:20},
{t:"blindness or loss of motor function. ",p:4,x:485,y:1478,w:294,h:20},
{t:"WWW.GUTHYJACKSONFOUNDA",p:4,x:444,y:1577,w:300,h:22},
{t:"TION.ORG",p:4,x:778,y:1577,w:93,h:22},
{t:"4",p:4,x:85,y:1577,w:11,h:26},
{t:"What Tops My 2010  ",p:4,x:858,y:96,w:326,h:37},
{t:"\"To Do\" List?  ",p:4,x:907,y:140,w:227,h:37},
{t:"by Victoria Jackson",p:4,x:922,y:176,w:180,h:22},
{t:"I	don't	want	to	",p:4,x:1043,y:221,w:119,h:21},
{t:"do	anything	too	",p:4,x:1043,y:242,w:129,h:21},
{t:"ambitious.	",p:4,x:1043,y:263,w:88,h:21},
{t:"Maybe	lose	5	",p:4,x:1043,y:284,w:107,h:21},
{t:"pounds.	Take	a	",p:4,x:1043,y:305,w:122,h:21},
{t:"cooking	class.	",p:4,x:1043,y:325,w:113,h:21},
{t:"Oh.	There	is	one	",p:4,x:1043,y:344,w:132,h:21},
{t:"more	thing.	I'm	",p:4,x:1043,y:365,w:126,h:21},
{t:"going	to	cure	a	",p:4,x:1043,y:386,w:121,h:21},
{t:"rare	disease	",p:4,x:1043,y:407,w:100,h:21},
{t:"called	NMO	",p:4,x:1043,y:428,w:95,h:21},
{t:"(Neuromyelitis	",p:4,x:1043,y:448,w:124,h:21},
{t:"Optica).	A	year	",p:4,x:1043,y:469,w:121,h:21},
{t:"ago,	my	16-year-old	daughter	got	the	",p:4,x:841,y:490,w:299,h:21},
{t:"diagnosis.	NMO	is	one	of	about	7,000	",p:4,x:841,y:511,w:298,h:21},
{t:"diseases	that	are	so	rare	that	little	or	no	",p:4,x:841,y:532,w:321,h:21},
{t:"money	is	spent	on	research,	prevention,	",p:4,x:841,y:550,w:321,h:21},
{t:"medicines	or	cures	--	the	bottom	line	",p:4,x:841,y:571,w:297,h:21},
{t:"being	they	don't	have	proIit	potential.	Last	",p:4,x:841,y:592,w:341,h:21},
{t:"year,	my	husband	Bill	and	I	created	a	",p:4,x:841,y:613,w:295,h:21},
{t:"Foundation	to	do	just	that.	We	had	a	",p:4,x:841,y:634,w:291,h:21},
{t:"three-day	symposium	in	November,	and	",p:4,x:841,y:655,w:321,h:21},
{t:"brought	doctors	in	from	Harvard,	",p:4,x:841,y:675,w:269,h:21},
{t:"Stanford,	the	Mayo	Clinic,	Scripps,	and	",p:4,x:841,y:696,w:308,h:21},
{t:"even	England	and	Japan,	but	the	biggest	",p:4,x:841,y:717,w:321,h:21},
{t:"deal	was	Patient	Day	(my	daughter's	idea;	",p:4,x:841,y:738,w:337,h:21},
{t:"why	can't	I	be	more	like	her?)	--	we	Ilew	in	",p:4,x:841,y:757,w:341,h:21},
{t:"those	who	have	NMO,	and	their	families.	",p:4,x:841,y:778,w:324,h:21},
{t:"Now,	for	the	Iirst	time,	there's	an	NMO	",p:4,x:841,y:809,w:309,h:21},
{t:"community.	One	day	my	daughter	said,	",p:4,x:841,y:830,w:312,h:21},
{t:"\"Mom,	this	is	bigger	than	you	and	me.\"	",p:4,x:841,y:861,w:309,h:21},
{t:"She's	right.	That	little	piece	of	wisdom	got	",p:4,x:841,y:882,w:337,h:21},
{t:"me	right	out	of	my	own	personal	fear	and	",p:4,x:841,y:903,w:334,h:21},
{t:"into	warrior	mode.	If	we	Iind	the	cure	for	",p:4,x:841,y:923,w:330,h:21},
{t:"NMO,	that	might	be	the	domino	that	",p:4,x:841,y:944,w:290,h:21},
{t:"knocks	down	MS	and	a	lot	of	other	",p:4,x:841,y:965,w:278,h:21},
{t:"autoimmune	diseases.	So	NMO	is	going	to	",p:4,x:841,y:984,w:335,h:21},
{t:"stand	for	NO	MORE	ORPHANS.	",p:4,x:841,y:1005,w:248,h:21},
{t:"But	Iirst	things	Iirst:	MY	2010	TO	DO	LIST:	",p:4,x:841,y:1067,w:341,h:21},
{t:"1)	CURE	NMO	(Neuromyelitis	Optica)",p:4,x:841,y:1094,w:298,h:21},
{t:"2)	Once	that's	done,	begin	curing	all	",p:4,x:841,y:1121,w:290,h:21},
{t:"orphan	diseases",p:4,x:841,y:1136,w:129,h:21},
{t:"3)	Start	cooking	class",p:4,x:841,y:1163,w:170,h:21},
{t:"4)	Lose	5	pounds",p:4,x:841,y:1190,w:137,h:21},
{t:"5)Lose	Iive	more	if	cooking	class	goes	",p:4,x:841,y:1215,w:307,h:21},
{t:"well",p:4,x:863,y:1232,w:33,h:21},
{t:"This text is a post from The Women's ",p:4,x:841,y:1285,w:308,h:19},
{t:"Conference, XX-Effect website.  To read ",p:4,x:841,y:1300,w:331,h:19},
{t:"the original post please visit: http://",p:4,x:841,y:1315,w:297,h:19},
{t:"www.womensconference.org/victoria-",p:4,x:841,y:1329,w:304,h:19},
{t:"jackson-2/  ",p:4,x:841,y:1344,w:95,h:19},
{t:"Photo by MATTHEW ROLSTON",p:4,x:854,y:461,w:157,h:14},
{t:"Questions or Comments about ",p:4,x:806,y:1405,w:408,h:33},
{t:"The Spectrum Newsletter, ",p:4,x:806,y:1438,w:347,h:34},
{t:"please email us at: ",p:4,x:806,y:1472,w:250,h:33},
{t:"gjcf@allggf.org",p:4,x:806,y:1505,w:188,h:38},
{t:"Calendar",p:5,x:865,y:107,w:190,h:49},
{t:"February  2010",p:5,x:722,y:198,w:177,h:26},
{t:"Check out our new Awareness Video for NMO,  ",p:5,x:722,y:225,w:479,h:24},
{t:"Video FAQ’s from top NMO Clinicians and the ",p:5,x:722,y:250,w:467,h:24},
{t:"2009 Patient Day Montage on our site. Please ",p:5,x:722,y:275,w:465,h:24},
{t:"visit: www.guthyjacksounfoundation.org",p:5,x:722,y:300,w:408,h:24},
{t:"February 28, 2010",p:5,x:722,y:352,w:212,h:26},
{t:"National Rare Disease Day of Observance",p:5,x:722,y:379,w:415,h:24},
{t:"April 17, 2010",p:5,x:727,y:432,w:165,h:26},
{t:"American Academy of Neurology",p:5,x:727,y:459,w:330,h:24},
{t:"2010 Annual Meeting, Toronto, Canada",p:5,x:727,y:484,w:399,h:24},
{t:"June 19 - 23, 2010",p:5,x:727,y:536,w:212,h:26},
{t:"European Neurological Society, Berlin",p:5,x:727,y:563,w:376,h:24},
{t:" ",p:5,x:727,y:588,w:13,h:24},
{t:"July 1 - 3, 2010",p:5,x:727,y:613,w:175,h:26},
{t:"3rd Latin American Congress on ",p:5,x:727,y:640,w:332,h:24},
{t:"Autoimmunity, Buenos Aires",p:5,x:727,y:665,w:287,h:24},
{t:"ECTRIMS",p:5,x:727,y:717,w:103,h:26},
{t:"Oct. 13 - 16, 2010 G⍥teburg, Sweden",p:5,x:727,y:744,w:377,h:27},
{t:"Oct. 19 - 22, 2011 Amsterdam ",p:5,x:727,y:773,w:315,h:24},
{t:"Oct. 10 - 13, 2012 Lyon, France",p:5,x:727,y:798,w:320,h:24},
{t:"November 8-10, 2010",p:5,x:727,y:850,w:250,h:26},
{t:"GJCF 3rd Annual Conference for NMO, Beverly ",p:5,x:727,y:877,w:470,h:24},
{t:"Hilton, Los Angeles ",p:5,x:727,y:902,w:201,h:24},
{t:"New	on	our	site!	FAQ	Video	on	all	of	your	NMO	questions	from	top	NMO	Specialists	from	around	the	World.",p:5,x:100,y:1132,w:1040,h:26},
{t:"Log	on	to	the	www.guthyjacksonfoundation.org	site	to	view	our	video	documentary	and	montages	from	",p:5,x:100,y:1174,w:1059,h:26},
{t:"the	2009	NMO	Symposium	and	Patient	Day.",p:5,x:100,y:1196,w:422,h:26},
{t:"Become	our	friend	on	Facebook.	Look	for	updates	and	meet	new	friends.	Visit	the	",p:5,x:331,y:1240,w:796,h:26},
{t:"Guthy-Jackson	Charitable	Foundation’s	website	to	connect	to	Facebook.	We	look	",p:5,x:331,y:1265,w:782,h:26},
{t:"forward	to	seeing	you	there!	Visit	",p:5,x:331,y:1290,w:329,h:26},
{t:"5",p:5,x:1195,y:1583,w:11,h:26},
{t:"WWW.GUTHYJACKSONFOUNDA",p:5,x:417,y:1583,w:300,h:22},
{t:"TION.ORG",p:5,x:751,y:1583,w:93,h:22},
{t:"With a primary mission to cure NMO, The Guthy-",p:5,x:104,y:429,w:524,h:29},
{t:"Jackson Charitable Foundation has been instrumental ",p:5,x:104,y:461,w:584,h:29},
{t:"in organizing a new community to support NMO - No ",p:5,x:104,y:492,w:576,h:29},
{t:"More Orphan Diseases. Eurordis estimates that there ",p:5,x:104,y:523,w:574,h:29},
{t:"exists between 6,000 – 8000 rare diseases, often ",p:5,x:104,y:554,w:536,h:29},
{t:"called orphan diseases, affecting between 6 – 8 ",p:5,x:104,y:586,w:518,h:29},
{t:"percent of the population. Finding a cure for a rare ",p:5,x:104,y:617,w:545,h:29},
{t:"orphan disease such as NMO can potentially unlock ",p:5,x:104,y:648,w:565,h:29},
{t:"new science behind prevalent diseases such as ",p:5,x:104,y:679,w:517,h:29},
{t:"multiple sclerosis and lupus, paving the way for new ",p:5,x:104,y:711,w:564,h:29},
{t:"treatments and potential cures for diseases that affect ",p:5,x:104,y:742,w:583,h:29},
{t:"millions of people. ",p:5,x:104,y:773,w:200,h:29},
{t:"For more information about NMO and The Guthy-Jackson ",p:5,x:104,y:836,w:576,h:27},
{t:"Charitable Foundation, please visit ",p:5,x:104,y:863,w:343,h:27},
{t:"www.guthyjacksonfoundation.org.",p:5,x:104,y:890,w:336,h:27},
{t:"For more information about Eurodis visit: www.eurordis.org | The Voice of ",p:5,x:104,y:944,w:603,h:22},
{t:"Rare Disease Patients in Europe",p:5,x:104,y:966,w:272,h:20},
{t:"Look Whatʼs New at ",p:5,x:391,y:1032,w:462,h:50},
{t:"www.guthyjacksonfoundation.org",p:5,x:349,y:1097,w:535,h:33},
{t:"“A Daughter’s Cure Is Priceless”",p:6,x:113,y:82,w:550,h:46},
{t:"A mother spends millions to fund research for neuromyelitis ",p:6,x:112,y:129,w:558,h:25},
{t:"optica,which can leave patients paralyzed or blind.",p:6,x:156,y:154,w:464,h:25},
{t:"By Sandy Banks, LA Times November 28, 2009",p:6,x:154,y:205,w:469,h:27},
{t:"Victoria Jackson doesn't need this weekend's retail sales to satisfy ",p:6,x:96,y:278,w:497,h:18},
{t:"her shopping list. She can afford to spend, with her lucrative ",p:6,x:96,y:296,w:457,h:18},
{t:"cosmetics business and a husband with a billion-dollar infomercial ",p:6,x:96,y:313,w:504,h:18},
{t:"marketing firm.",p:6,x:96,y:332,w:116,h:18},
{t:"They've already put $15 million toward their most important ",p:6,x:96,y:369,w:458,h:18},
{t:"holiday gift, one that can't be wrapped or put under a Christmas ",p:6,x:96,y:388,w:481,h:18},
{t:"tree, because it's not something from the mall or a boutique.",p:6,x:96,y:405,w:449,h:18},
{t:"It's the quest for a clean bill of health for their 16-year-old daughter, ",p:6,x:96,y:442,w:514,h:18},
{t:"who suffers from a rare, debilitating disease that has been -- until ",p:6,x:96,y:461,w:492,h:18},
{t:"now -- virtually unknown and ignored by the medical community.",p:6,x:96,y:480,w:494,h:18},
{t:"It's easy to begrudge the fortunes of the rich. I admit to a moment of ",p:6,x:96,y:515,w:515,h:18},
{t:"eye-rolling when I first heard of this millionaire mom trying to buy ",p:6,x:96,y:534,w:507,h:18},
{t:"her daughter's way out of an incurable disease.",p:6,x:96,y:553,w:350,h:18},
{t:"Then I thought of all the nights I spent hovering over my ailing kids, ",p:6,x:96,y:588,w:519,h:18},
{t:"worrying about headaches and stomach pains that turned out to be ",p:6,x:96,y:607,w:500,h:18},
{t:"garden-variety illnesses. I imagined listening to a doctor tell me that ",p:6,x:96,y:625,w:517,h:18},
{t:"one of those aches might mean my daughter would lose her ability ",p:6,x:96,y:644,w:502,h:18},
{t:"to walk or see.",p:6,x:96,y:663,w:109,h:18},
{t:"That's what happened to Jackson last year, when a pain in her ",p:6,x:96,y:698,w:465,h:18},
{t:"daughter's eye landed them in a neurologist's office. The symptoms ",p:6,x:96,y:717,w:507,h:18},
{t:"-- eye pain, fading colors, loss of vision in one eye -- were ",p:6,x:96,y:736,w:442,h:18},
{t:"diagnosed as neuromyelitis optica, a disorder known as NMO that ",p:6,x:96,y:755,w:500,h:18},
{t:"would have terrified Jackson if she had known then what it is.",p:6,x:96,y:771,w:463,h:18},
{t:"\"I was in 'mom denial,' \" she told me. \"I didn't have any idea of the ",p:6,x:96,y:809,w:505,h:18},
{t:"seriousness of the world I was entering . . . until I heard that in four ",p:6,x:96,y:828,w:509,h:18},
{t:"years, my daughter could be blind or paralyzed. That we could lose ",p:6,x:96,y:846,w:508,h:18},
{t:"her.\"",p:6,x:96,y:863,w:35,h:18},
{t:"Jackson went from denial into overdrive.",p:6,x:96,y:900,w:307,h:18},
{t:"\"We spent spring break at the Mayo Clinic,\" she said, seeking ",p:6,x:96,y:938,w:467,h:18},
{t:"advice from one of the few physicians who has extensively studied ",p:6,x:96,y:955,w:506,h:18},
{t:"the disorder. She told that doctor, \"You're doing research. I've got a ",p:6,x:96,y:973,w:506,h:18},
{t:"checkbook. You and I are going to get to know each other.\"",p:6,x:96,y:992,w:444,h:18},
{t:"Jackson is blunt and unaccustomed to failure. Sometimes it takes a ",p:6,x:96,y:1030,w:505,h:18},
{t:"desperate parent with deep pockets to bypass convention and jump-",p:6,x:96,y:1046,w:506,h:18},
{t:"start medical advances.",p:6,x:96,y:1065,w:174,h:18},
{t:"Like the mother in Minnesota who sank six years of profits from her ",p:6,x:96,y:1103,w:517,h:18},
{t:"successful tech firms into finding new ways to treat autism. She's ",p:6,x:96,y:1121,w:491,h:18},
{t:"convinced that the nonprofit Hyperbaric Treatment Center she ",p:6,x:96,y:1138,w:469,h:18},
{t:"funded has improved life for her autistic son and his classmates.",p:6,x:96,y:1157,w:480,h:18},
{t:"And the Nevada couple whose $5 million launched a research ",p:6,x:96,y:1194,w:468,h:18},
{t:"institute that helped document a viral link to chronic fatigue ",p:6,x:96,y:1213,w:454,h:18},
{t:"syndrome, a disorder that mystified doctors and afflicted their ",p:6,x:96,y:1230,w:466,h:18},
{t:"daughter.",p:6,x:96,y:1248,w:69,h:18},
{t:"Jackson and her husband, Bill Guthy, founded the Guthy-Jackson ",p:6,x:96,y:1286,w:495,h:18},
{t:"Charitable Foundation last year to fund research into NMO, which ",p:6,x:96,y:1305,w:503,h:18},
{t:"had been considered a strain of the autoimmune disorder multiple ",p:6,x:96,y:1321,w:496,h:18},
{t:"sclerosis, but is now known to require different treatment and have a ",p:6,x:96,y:1340,w:519,h:18},
{t:"different prognosis.",p:6,x:96,y:1359,w:146,h:18},
{t:"The disease tends to strike suddenly, progress quickly, and follow an ",p:6,x:96,y:1396,w:519,h:18},
{t:"unpredictable path of remission and relapse. NMO is so rare -- with ",p:6,x:96,y:1413,w:511,h:18},
{t:"fewer than 4,000 patients, compared with 400,000 with multiple ",p:6,x:96,y:1432,w:486,h:18},
{t:"sclerosis -- that drug companies have no financial incentive to study ",p:6,x:96,y:1450,w:513,h:18},
{t:"treatments.",p:6,x:96,y:1469,w:82,h:18},
{t:"In the past, it often took years to diagnose it, leaving patients with ",p:6,x:96,y:1505,w:499,h:18},
{t:"irreversible damage to their spinal cords and optic nerves.",p:6,x:96,y:1523,w:433,h:18},
{t:"Candace Coffee of Bakersfield woke up one morning six years ago ",p:6,x:662,y:415,w:506,h:18},
{t:"with flu-like symptoms and blurred vision. Within a matter of hours, ",p:6,x:662,y:434,w:517,h:18},
{t:"her vision was gone. \"It was like a black curtain going down,\" she ",p:6,x:662,y:450,w:500,h:18},
{t:"recalled.",p:6,x:662,y:469,w:64,h:18},
{t:"Steroids restored her sight temporarily, but months later, \"my right ",p:6,x:662,y:507,w:503,h:18},
{t:"eye started to go . . . and my skin felt like it was being ripped off,\" ",p:6,x:662,y:525,w:501,h:18},
{t:"she told me. Before long, the professional dancer \"was stumbling ",p:6,x:662,y:542,w:493,h:18},
{t:"around and blind.\"",p:6,x:662,y:561,w:139,h:18},
{t:"Now, she's learned to recognize the symptoms and seek immediate ",p:6,x:662,y:598,w:504,h:18},
{t:"treatment. She is blind in one eye, but is dancing again. \"But if I'd ",p:6,x:662,y:617,w:498,h:18},
{t:"known what it was, I might have been able to save my sight,\" she ",p:6,x:662,y:634,w:495,h:18},
{t:"said. \"That's why getting the word out is so important.\"",p:6,x:662,y:653,w:413,h:18},
{t:"I met Coffee at a conference Jackson sponsored this month in ",p:6,x:662,y:690,w:465,h:18},
{t:"Beverly Hills. She picked up the tab for scientists flown in from ",p:6,x:662,y:709,w:483,h:18},
{t:"around the world, and dozens of patients from around the country. It ",p:6,x:662,y:725,w:517,h:18},
{t:"was the first time many of them had met anyone else with their ",p:6,x:662,y:744,w:476,h:18},
{t:"disease.",p:6,x:662,y:763,w:58,h:18},
{t:"\"Can you imagine, in this day when everybody's got a support ",p:6,x:662,y:800,w:470,h:18},
{t:"group, for these people to feel so alone? I wanted them to be able to ",p:6,x:662,y:817,w:513,h:18},
{t:"sit down together, talk to one another,\" Jackson said.",p:6,x:662,y:836,w:394,h:18},
{t:"That alone, she said, was worth the money.",p:6,x:662,y:873,w:322,h:18},
{t:"NMO is just a tiny blip in the medical cosmos. In this world, where ",p:6,x:662,y:909,w:510,h:18},
{t:"medical choices turn on dollars and cents -- from mammograms for ",p:6,x:662,y:928,w:510,h:18},
{t:"40-year-olds to end-of-life care for octogenarians -- how wise is it, I ",p:6,x:662,y:946,w:515,h:18},
{t:"couldn't help but wonder, to sink so many millions into something ",p:6,x:662,y:965,w:500,h:18},
{t:"that might help so few?",p:6,x:662,y:984,w:175,h:18},
{t:"Then I met Winona Davis, a single mother in Rialto raising two ",p:6,x:662,y:1019,w:481,h:18},
{t:"daughters with NMO.",p:6,x:662,y:1038,w:164,h:18},
{t:"The oldest, now 20, got her first symptoms at 9. She spent her 10th ",p:6,x:662,y:1075,w:506,h:18},
{t:"birthday hospitalized; doctors couldn't figure out why she couldn't ",p:6,x:662,y:1092,w:499,h:18},
{t:"see. Since then, she has battled paralysis and blindness off and on, ",p:6,x:662,y:1111,w:501,h:18},
{t:"traumatized not just by the severity of her symptoms, but by their ",p:6,x:662,y:1130,w:495,h:18},
{t:"unpredictability.",p:6,x:662,y:1148,w:122,h:18},
{t:"Until her family attended Jackson's conference, \"we felt like we ",p:6,x:662,y:1184,w:483,h:18},
{t:"were aliens,\" Davis said.",p:6,x:662,y:1203,w:185,h:18},
{t:"She's hoping that the foundation's work will lead to medical ",p:6,x:662,y:1240,w:453,h:18},
{t:"advances to help her daughters. But it's already been a gift, she said, ",p:6,x:662,y:1259,w:515,h:18},
{t:"to other families in their small world.",p:6,x:662,y:1275,w:279,h:18},
{t:"\"The other mothers, now they have a chance to know, to tell ",p:6,x:662,y:1313,w:455,h:18},
{t:"someone why their kids can't ride a bike. So they can have friends. ",p:6,x:662,y:1332,w:504,h:18},
{t:"So the other kids aren't laughing at her when her legs give out, or ",p:6,x:662,y:1350,w:493,h:18},
{t:"she wets herself in school.\"",p:6,x:662,y:1367,w:204,h:18},
{t:"\"Victoria knows,\" Davis said, how frightening it is, how helpless the ",p:6,x:662,y:1405,w:519,h:18},
{t:"disease can make a mother feel. \"You don't sleep, you can't ",p:6,x:662,y:1423,w:447,h:18},
{t:"think. . . . You can't even tell your child what's wrong. All you can ",p:6,x:662,y:1442,w:499,h:18},
{t:"do is try and comfort them.\"",p:6,x:662,y:1456,w:211,h:20},
{t:"Unless you're a mother with millions to give.",p:6,x:662,y:1489,w:337,h:20},
{t:"Copyright © 2010, The Los Angeles Times",p:6,x:662,y:1506,w:318,h:20},
{t:"WWW.GUTHYJACKSONFOUNDA",p:6,x:417,y:1583,w:300,h:22},
{t:"TION.ORG",p:6,x:751,y:1583,w:93,h:22},
{t:"6",p:6,x:66,y:1583,w:11,h:26},
{t:"Photo by Mahlon",p:6,x:1085,y:378,w:74,h:14},
{t:"SPECTRUM - The GJCF NMO ",p:7,x:772,y:90,w:404,h:29},
{t:"Online Community Website",p:7,x:797,y:128,w:346,h:29},
{t:"Make new ",p:7,x:1001,y:180,w:120,h:25},
{t:"contacts, keep ",p:7,x:1001,y:205,w:168,h:25},
{t:"up with friends, ",p:7,x:1001,y:232,w:175,h:25},
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{t:"NMO and more ",p:7,x:1001,y:284,w:177,h:25},
{t:"with Spectrum, ",p:7,x:1001,y:312,w:172,h:25},
{t:"The Guthy-",p:7,x:1001,y:337,w:125,h:25},
{t:"Jackson ",p:7,x:1001,y:364,w:98,h:25},
{t:"Charitable ",p:7,x:1001,y:391,w:120,h:25},
{t:"Foundationʼs online NMO community.",p:7,x:756,y:416,w:415,h:25},
{t:"Sign in, create your profile and begin ",p:7,x:756,y:468,w:414,h:25},
{t:"sharing your story today!",p:7,x:756,y:495,w:273,h:25},
{t:"Please visit:",p:7,x:756,y:547,w:133,h:25},
{t:"spectrum.guthyjacksonfoundation.org ",p:7,x:756,y:574,w:422,h:25},
{t:"to begin your new NMO online ",p:7,x:756,y:599,w:343,h:25},
{t:"experience.",p:7,x:756,y:626,w:129,h:25},
{t:"WWW.GUTHYJACKSONFOUNDA",p:7,x:417,y:1583,w:300,h:22},
{t:"TION.ORG",p:7,x:751,y:1583,w:93,h:22},
{t:"NMO Roundtable Conference and ",p:7,x:202,y:76,w:419,h:33},
{t:"NMO Patient Session Continued from Page 1.",p:7,x:204,y:112,w:408,h:42},
{t:"7",p:7,x:1195,y:1583,w:11,h:26},
{t:"Recent studies have significantly changed our understanding of the role of vitamin D in health and disease.  In the past, it was assumed that most ",p:7,x:93,y:804,w:1092,h:20},
{t:"people have adequate vitamin D levels and that the effects of vitamin D are restricted to regulating calcium absorption and maintaining bone ",p:7,x:93,y:822,w:1058,h:20},
{t:"health.  However, studies over the past decade have proven that these views are incorrect.  It is now recognized that there is an epidemic of ",p:7,x:93,y:841,w:1046,h:20},
{t:"vitamin D deficiency in many countries, including the United States, and that, in ",p:7,x:93,y:860,w:608,h:20},
{t:"addition to its effects on bones and calcium, vitamin D exerts important actions on ",p:7,x:93,y:879,w:622,h:20},
{t:"many other body systems, including the immune system.  ",p:7,x:93,y:897,w:435,h:20},
{t:"Vitamin D has not been rigorously studied in NMO.  It has been fairly extensively ",p:7,x:93,y:935,w:620,h:20},
{t:"studied in MS.  Multiple studies suggest that vitamin D may have a beneficial effect ",p:7,x:93,y:954,w:634,h:20},
{t:"on the disease process of MS.  In the animal model of MS, disease severity is ",p:7,x:93,y:972,w:584,h:20},
{t:"worsened by vitamin D deficiency and improved by supplementing the diet with ",p:7,x:93,y:991,w:608,h:20},
{t:"vitamin D.  Multiple studies indicate that the risk of developing MS is increased in ",p:7,x:93,y:1010,w:624,h:20},
{t:"those who have low vitamin D levels.  For those who have MS, low vitamin D ",p:7,x:93,y:1029,w:593,h:20},
{t:"levels have been associated with higher risk for attacks and more severe disability.  ",p:7,x:93,y:1047,w:627,h:20},
{t:"Large, rigorously conducted clinical trials of vitamin D supplements in people with ",p:7,x:93,y:1066,w:629,h:20},
{t:"MS are planned but have not yet been conducted.",p:7,x:93,y:1085,w:370,h:20},
{t:"As noted, MS is generally thought of as a more T cell directed disease.  In terms of ",p:7,x:93,y:1122,w:626,h:20},
{t:"B cells, which appear to be more centrally involved in NMO, scientific studies ",p:7,x:93,y:1141,w:594,h:20},
{t:"indicate that vitamin D has regulatory effects on B cell function.  In addition, there ",p:7,x:93,y:1160,w:624,h:20},
{t:"is suggestive evidence that vitamin D may have beneficial effects on some “B cell ",p:7,x:93,y:1179,w:620,h:20},
{t:"diseases,” including lupus and rheumatoid arthritis.",p:7,x:93,y:1197,w:384,h:20},
{t:"Fatty Acids   Fatty acids, the compounds that make up fats, have important actions ",p:7,x:93,y:1235,w:624,h:20},
{t:"on multiple body systems, including the immune system.  There are two main types ",p:7,x:93,y:1254,w:631,h:20},
{t:"of fatty acids.  Saturated fatty acids, or saturated fats, are hard at room temperature and are what we generally think of as fat.  The fat on red ",p:7,x:93,y:1272,w:1055,h:20},
{t:"meat is an example of a saturated fat.  The other major type of fatty acid is unsaturated fatty acid, which is liquid or soft at room temperature and ",p:7,x:93,y:1291,w:1092,h:20},
{t:"is commonly referred to as oil.  On the basis of chemical structure, unsaturated fats are referred to as monounsaturated fatty acids (which are ",p:7,x:93,y:1310,w:1061,h:20},
{t:"present in olive oil) or polyunsaturated fatty acids.  The two main forms of polyunsaturated fatty acids, also known as PUFAs, are omega-six ",p:7,x:93,y:1329,w:1061,h:20},
{t:"fatty acids, which are found in sunflower and safflower seed oils, and omega-three fatty acids, which are present in fish oil.  ",p:7,x:93,y:1347,w:933,h:20},
{t:"Fatty acids affect immune system function.  Immune system suppression, which could be beneficial for NMO, is produced by omega-six fatty ",p:7,x:93,y:1385,w:1069,h:20},
{t:"acids and especially by omega-three fatty acids.  This effect on the immune system appears to involve T cells as well as B cells.",p:7,x:93,y:1404,w:957,h:20},
{t:"Although omega-three and omega-six fatty acids have not been studied specifically in NMO, they have been studied in other immune diseases.  ",p:7,x:93,y:1441,w:1081,h:20},
{t:"In investigations of MS, some studies of large populations, known as epidemiologic studies, suggest that a high intake of omega-three fatty acids ",p:7,x:93,y:1460,w:1092,h:20},
{t:"may be associated with a lower risk of developing MS.  ",p:7,x:93,y:1479,w:421,h:20},
{t:"The remainder of Dr.Bowling’s Article on Diet and NMO: A Three-Step Approach can be found on our website at ",p:7,x:93,y:1518,w:852,h:20},
{t:"www.guthyjacksonfoundation.org",p:7,x:93,y:1537,w:251,h:20},
{t:"Healthy You - Vitamin D and NMO",p:7,x:212,y:693,w:883,h:57},
{t:"by Dr. Allen Bowling, M.D., PhD.",p:7,x:495,y:756,w:317,h:28},
{t:"“Meeting all the patients, doctors and caregivers was the best part,” said Jesus Loreto ",p:7,x:83,y:168,w:644,h:20},
{t:"who traveled from Florida to attend with his wife Maria.  “The day we got to be in the ",p:7,x:83,y:187,w:650,h:20},
{t:"same room with the doctors, specialists, patients, caregivers and all, I shed tears, but ",p:7,x:83,y:206,w:636,h:20},
{t:"tears of hope, faith and mostly tears for being proud of all of them.  They are all my ",p:7,x:83,y:224,w:632,h:20},
{t:"heroes.”",p:7,x:83,y:243,w:61,h:20},
{t:"Contributing to this scientific progress during the Patient Session pre-",p:7,x:158,y:262,w:523,h:20},
{t:"registered attendees with NMO participated in the Foundation’s Blood Draw.  A total ",p:7,x:83,y:281,w:641,h:20},
{t:"of 19 samples were collected onsite to be cached at The Guthy-Jackson Repository for ",p:7,x:83,y:299,w:652,h:20},
{t:"NMO.  The repository makes NMO blood samples available for scientific study to ",p:7,x:83,y:318,w:622,h:20},
{t:"qualified researchers who work to find a possible cure for NMO.",p:7,x:83,y:337,w:485,h:20},
{t:"Those who were not able to travel to Los Angles to attend the Patient ",p:7,x:157,y:356,w:522,h:20},
{t:"Session logged onto the Foundation’s streaming webcast, where users watched live ",p:7,x:83,y:374,w:627,h:20},
{t:"video and typed their questions to the panel.",p:7,x:83,y:393,w:331,h:20},
{t:"Other portions of the Patient Session included presentations about the ",p:7,x:158,y:412,w:526,h:20},
{t:"incidence and prevalence of NMO, NMO treatments, NMO community social ",p:7,x:83,y:431,w:590,h:20},
{t:"networking and more.   At the end of the session, attendees had a chance to share their ",p:7,x:83,y:449,w:650,h:20},
{t:"stories to members of the press and media to help raise awareness of NMO and tell ",p:7,x:83,y:468,w:626,h:20},
{t:"others that they are not alone in this fight against this rare orphan disease.",p:7,x:83,y:487,w:551,h:20},
{t:"\"It never ceases to amaze me how powerful human interaction can be,” said ",p:7,x:158,y:506,w:573,h:20},
{t:"Dr. Greenberg.  “Listening to the stories of individuals and families living with NMO ",p:7,x:83,y:524,w:645,h:20},
{t:"reminded myself and the other clinician scientists why it is we are working to end this ",p:7,x:83,y:543,w:650,h:20},
{t:"condition. It also reminded us that we are partnered with one of the most dedicated ",p:7,x:83,y:562,w:625,h:20},
{t:"and passionate groups of patients in the world.\"",p:7,x:83,y:581,w:356,h:20},
{t:"The Foundation gives special recognition to The Annenberg Foundation for its ",p:7,x:83,y:618,w:593,h:20},
{t:"generous financial contribution supporting the 2009 NMO Roundtable Conference.",p:7,x:83,y:637,w:624,h:20},
{t:"THE GUTHY-JACKSON CHARITABLE FOUNDATION  ",p:8,x:147,y:560,w:997,h:37},
{t:"FIRST ANNUAL PATIENT DAY ",p:8,x:358,y:614,w:567,h:37},
{t:"NOVEMBER 11, 2009",p:8,x:455,y:668,w:364,h:37},
{t:"Did You Know?",p:8,x:414,y:1120,w:276,h:37},
{t:"41  Doctors and ",p:8,x:407,y:1210,w:201,h:29},
{t:"Researchers from 4 ",p:8,x:408,y:1245,w:245,h:29},
{t:"Countries attended the ",p:8,x:408,y:1281,w:294,h:29},
{t:"2nd Annual NMO ",p:8,x:408,y:1316,w:231,h:29},
{t:"Conference",p:8,x:408,y:1351,w:143,h:29},
{t:"56 Patients and your ",p:8,x:408,y:1422,w:257,h:29},
{t:"families and friends ",p:8,x:408,y:1458,w:248,h:29},
{t:"attended Patient Day",p:8,x:408,y:1493,w:263,h:29},
{t:"WWW.GUTHYJACKSONFOUNDA",p:9,x:417,y:1573,w:300,h:22},
{t:"TION.ORG",p:9,x:751,y:1573,w:93,h:22},
{t:"9",p:9,x:1195,y:1583,w:11,h:26},
{t:"Living With NMO ",p:9,x:474,y:85,w:293,h:43},
{t:"Q&A from the 2009  ",p:9,x:456,y:130,w:341,h:43},
{t:"NMO Patient Session",p:9,x:437,y:176,w:359,h:43},
{t:"GJCF NMO ",p:9,x:930,y:78,w:208,h:41},
{t:"Repository Update",p:9,x:862,y:130,w:333,h:41},
{t:"What	is	the	comparison	of	a	mild	a2ack	",p:9,x:429,y:244,w:348,h:25},
{t:"and	a	severe	a2ack?",p:9,x:429,y:269,w:175,h:25},
{t:"Dr.	Bruce	Cree:		I	think	we've	probably	all	",p:9,x:429,y:315,w:350,h:25},
{t:"experienced	this	now.		When	we	first	were	",p:9,x:429,y:338,w:364,h:25},
{t:"dealing	with	pa@ents	who	had	Devic's	or	",p:9,x:429,y:363,w:346,h:25},
{t:"NMO,	we	used	severe	op@c	neuri@s,	severe	acute	transverse	myeli@s	where	there	was	",p:9,x:64,y:388,w:729,h:25},
{t:"loss	of	motor	func@on	and	eventually	loss	of	bowel	and	bladder.		Now	we	realize	there	",p:9,x:64,y:413,w:733,h:25},
{t:"can	be	relapses,	par@cularly	in	the	seHng	of	treatments	that	are	not	as	severe	as	the	",p:9,x:64,y:436,w:719,h:25},
{t:"aIacks	that	we	typically	have	associated	with	the	disease.		For	example,	a	pa@ent	",p:9,x:64,y:461,w:691,h:25},
{t:"could	have	pain	or	loss	of	sensa@on	in	an	area	and	then	imaging	of	the	spinal	cord	will	",p:9,x:64,y:486,w:729,h:25},
{t:"reveal	a	contrast-sensing	lesion	with	Neuromyeli@s	Op@ca.		So	you	may	not	have	any	",p:9,x:64,y:509,w:717,h:25},
{t:"motor	impairment	and	normal	bowel	and	bladder,	just	some	changes	in	sensa@on	and	",p:9,x:64,y:534,w:731,h:25},
{t:"that	can	be	a	flare.		We	have	seen	with	serial	MRI,	in	one	pa@ent	in	par@cular,	there	",p:9,x:64,y:559,w:709,h:25},
{t:"can	be	evident	inflamma@on	in	a	seHng	even	without	any	ac@ve	symptoms.		We	are	",p:9,x:64,y:582,w:716,h:25},
{t:"s@ll	in	the	process	of	learning	more	and	more	about	the	disease.		If	you	have	a	new	",p:9,x:64,y:607,w:705,h:25},
{t:"symptom	that	has	come	on	that	really	lasts	for	more	than	a	day	and	it's	something	",p:9,x:64,y:632,w:699,h:25},
{t:"different	from	what	you	really	experienced	before,	",p:9,x:64,y:657,w:431,h:25},
{t:"that	type	of	thing,	whether	it	be	a	sensory	change,	",p:9,x:64,y:680,w:431,h:25},
{t:"motor	weakness	or	change	in	bowel	and	bladder	or	",p:9,x:64,y:705,w:438,h:25},
{t:"change	in	vision,	they	need	to	be	evaluated	by	your	",p:9,x:64,y:730,w:438,h:25},
{t:"neurologist.		If	you	are	geHng	those	sorts	of	things	it's	",p:9,x:64,y:753,w:463,h:25},
{t:"probably	feasible	to	consult	with	your	neurologist,	get	",p:9,x:64,y:778,w:460,h:25},
{t:"examined.",p:9,x:64,y:803,w:87,h:25},
{t:"Is	there	anyone	working	on	a	way	to	get	back	what	",p:9,x:64,y:846,w:443,h:25},
{t:"has	already	been	done?		For	instance,	being	blind	in	",p:9,x:64,y:871,w:451,h:25},
{t:"one	eye?",p:9,x:64,y:896,w:77,h:25},
{t:"Dr.	Benjamin	Greenberg:		I	think	it's	being	worked	on	",p:9,x:64,y:942,w:450,h:25},
{t:"poten@ally.		There	are	mul@ple	avenues.		We	talked	",p:9,x:64,y:969,w:437,h:25},
{t:"about	preven@on.		Once	you	are	diagnosed	with	the	disease,	you	undergo	therapies.		",p:9,x:64,y:996,w:722,h:25},
{t:"The	overall	flavor	of	your	ques@on	is	on	regenera@on	from	damage.		The	regenera@on	",p:9,x:64,y:1023,w:729,h:25},
{t:"is	going	to	take	two	flavors.		One	is	research	being	done	in	cell-based	therapies,	stem	",p:9,x:64,y:1051,w:720,h:25},
{t:"cell	research.		And	the	other	avenue	is	a	molecule	drug	that	would	promote	repair.		",p:9,x:64,y:1078,w:705,h:25},
{t:"There	is	research	being	done	on	both.		For	example,	if	somebody's	op@c	nerve	has	the	",p:9,x:64,y:1105,w:731,h:25},
{t:"wires	intact,	but	the	insula@on	gone,	so	the	myelin	gone,	this	term	is	called	",p:9,x:64,y:1132,w:636,h:25},
{t:"\"demyelina@ng.\"	The	wire	is	intact	-	there	is	actually	tremendous	hope.		That	is	a	great	",p:9,x:64,y:1159,w:733,h:25},
{t:"target	for	stem	cell	therapy.		Between	the	op@c	nerve	and	the	spinal	cord,	the	op@c	",p:9,x:64,y:1186,w:706,h:25},
{t:"nerve	is	a	great	place	to	go.		It's	accessible,	minimally	invasive.		What	we	are	star@ng	",p:9,x:64,y:1213,w:716,h:25},
{t:"to	do	is	imaging	studies	to	separate	out	pa@ents	who	have	intact	wires,	but	damaged	",p:9,x:64,y:1240,w:721,h:25},
{t:"insula@on.		They	are	going	to	be	great	candidates	for	these	therapies	versus	ones	that	",p:9,x:64,y:1267,w:726,h:25},
{t:"might	need	more	extensive	repair.		On	the	small	molecule	side,	there			are	a	couple	of	",p:9,x:64,y:1294,w:725,h:25},
{t:"acts	moving	to	Phase	1	clinical	trials	where	the	actual	drug	helps	grow	new	myelin.		",p:9,x:64,y:1321,w:707,h:25},
{t:"These	are	things	that	are	really	no	longer	scien@fic	func@ons.		We	are	partnering	hard	",p:9,x:64,y:1348,w:725,h:25},
{t:"trying	to	get	our	pa@ents	ready	and	keep	them	ready,	hard	on	the	preven@on	side.		",p:9,x:64,y:1376,w:704,h:25},
{t:"We	don't	want	new	damages	for	individuals	talking	about	spinal	cord	issues.		Same	",p:9,x:64,y:1403,w:703,h:25},
{t:"ques@on	about	regenera@on.		We	are	talking	with	everyone	to	make	sure	you	are	",p:9,x:64,y:1430,w:690,h:25},
{t:"exercising	-	make	sure	you	are	ac@ve,	make	sure	there	is	nothing	wrong	with	joints	or	",p:9,x:64,y:1457,w:722,h:25},
{t:"muscles.		When	I	go	to	repair	a	spinal	cord,	we	have	to	have	something	to	correct	to.		",p:9,x:64,y:1484,w:723,h:25},
{t:"You	have	to	do	your	part	as	much	as	possible	to	stay	healthy	while	we	are	doing	our	",p:9,x:64,y:1511,w:710,h:25},
{t:"part	to	get	the	therapies.		That	would	be	my	approach.",p:9,x:64,y:1538,w:461,h:25},
{t:"The cache of collected samples continues ",p:9,x:820,y:220,w:402,h:22},
{t:"to grow at the Guthy-Jackson Repository ",p:9,x:820,y:245,w:408,h:22},
{t:"for NMO! ",p:9,x:820,y:270,w:103,h:22},
{t:"Those living with NMO are invited to ",p:9,x:820,y:318,w:353,h:22},
{t:"schedule a blood draw. Our study nurse will ",p:9,x:820,y:343,w:409,h:22},
{t:"travel to any location within the continental ",p:9,x:820,y:366,w:405,h:22},
{t:"United States. Samples can also be drawn at ",p:9,x:820,y:391,w:410,h:22},
{t:"one of our collection sites.  This is a free ",p:9,x:820,y:416,w:384,h:22},
{t:"service paid for by The Guthy-Jackson ",p:9,x:820,y:441,w:384,h:22},
{t:"Charitable Foundation.",p:9,x:820,y:464,w:230,h:22},
{t:"To schedule your appointment please ",p:9,x:820,y:512,w:400,h:25},
{t:"contact:",p:9,x:820,y:539,w:86,h:25},
{t:"Sara Loud - Repository Director at the ",p:9,x:820,y:576,w:358,h:22},
{t:"Accelerated Cure Project",p:9,x:820,y:601,w:230,h:22},
{t:"Phone: 781.487.0032     Fax: 781.487.0009",p:9,x:820,y:624,w:396,h:22},
{t:"Email: ",p:9,x:977,y:649,w:66,h:22},
{t:"sloud@acceleratedcure.org",p:9,x:977,y:674,w:249,h:22},
{t:"www.acceleratedcure.org ",p:9,x:977,y:697,w:237,h:22},
{t:"Sample Collection Sites",p:9,x:982,y:747,w:249,h:25},
{t:"• Johns Hopkins School of ",p:9,x:977,y:776,w:226,h:20},
{t:"Medicine, Baltimore",p:9,x:977,y:803,w:172,h:20},
{t:"• University of Texas ",p:9,x:977,y:830,w:181,h:20},
{t:"Southwestern Medical Center, ",p:9,x:977,y:857,w:255,h:20},
{t:"Dallas",p:9,x:977,y:884,w:53,h:20},
{t:"• Multiple Sclerosis Research ",p:9,x:977,y:911,w:251,h:20},
{t:"Center of New York",p:9,x:977,y:938,w:167,h:20},
{t:"• Shepherd Center, Inc., ",p:9,x:977,y:965,w:203,h:20},
{t:"Atlanta",p:9,x:820,y:992,w:61,h:20},
{t:"• University of Massachusetts Medical School",p:9,x:820,y:1019,w:385,h:20},
{t:"• Barrow Neurological Institute, Phoenix",p:9,x:820,y:1046,w:341,h:20},
{t:"• Beth Israel Deaconess Medical Center, Boston",p:9,x:820,y:1073,w:400,h:20},
{t:"• Ohio State University Medical Center, ",p:9,x:820,y:1101,w:337,h:20},
{t:"Columbus",p:9,x:820,y:1128,w:85,h:20},
{t:"• Rocky Mountain MS Center at Anschutz ",p:9,x:820,y:1155,w:357,h:20},
{t:"Medical Campus, University of Colorado Denver ",p:9,x:820,y:1182,w:415,h:20},
{t:"Pediatric Sample Collection Sites ",p:9,x:820,y:1216,w:359,h:25},
{t:"• Johns Hopkins School of Medicine, Baltimore",p:9,x:820,y:1248,w:399,h:20},
{t:"• University of Texas Southwestern Medical ",p:9,x:820,y:1276,w:373,h:20},
{t:"Center, Dallas",p:9,x:820,y:1303,w:118,h:20},
{t:"• Multiple Sclerosis Research Center of New ",p:9,x:820,y:1330,w:379,h:20},
{t:"York",p:9,x:820,y:1357,w:40,h:20},
{t:"• University of Massachusetts Medical School",p:9,x:820,y:1384,w:385,h:20},
{t:"• Barrow Neurological Institute, Phoenix ",p:9,x:820,y:1411,w:346,h:20},
{t:"To learn more about the repository, its ",p:9,x:820,y:1465,w:322,h:20},
{t:"operations, and available samples and data please ",p:9,x:820,y:1492,w:417,h:20},
{t:"visit the Foundation’s web site at: http://",p:9,x:820,y:1519,w:335,h:20},
{t:"www.guthyjacksonfoundation.org/repository.php ",p:9,x:820,y:1543,w:414,h:24},
{t:"Jeffrey Bennett, M.D., Ph.D.",p:10,x:39,y:124,w:353,h:32},
{t:"University of Colorado ",p:10,x:39,y:157,w:277,h:32},
{t:"Denver",p:10,x:39,y:190,w:85,h:32},
{t:"12700 E. 19th Ave.",p:10,x:39,y:224,w:223,h:32},
{t:"Aurora, CO 80108",p:10,x:39,y:257,w:217,h:32},
{t:"Phone: (720) 848-2080",p:10,x:39,y:290,w:270,h:32},
{t:"Fax: (720) 848-2106",p:10,x:39,y:324,w:241,h:32},
{t:"John Corboy, M.D.",p:10,x:39,y:390,w:239,h:32},
{t:"University of Colorado ",p:10,x:39,y:424,w:277,h:32},
{t:"Denver",p:10,x:39,y:457,w:85,h:32},
{t:"12631 East 17th Ave. ",p:10,x:39,y:490,w:256,h:32},
{t:"Aurora, CO 80045",p:10,x:39,y:524,w:217,h:32},
{t:"Phone: (720) 848-2080",p:10,x:39,y:557,w:270,h:32},
{t:"Fax: (720) 848-2106",p:10,x:39,y:590,w:241,h:32},
{t:"Bruce Cree, M.D., Ph.D.",p:10,x:39,y:657,w:303,h:32},
{t:"Univ. of California San ",p:10,x:39,y:690,w:279,h:32},
{t:"Francisco",p:10,x:39,y:724,w:113,h:32},
{t:"513 Parnassus Ave.",p:10,x:39,y:757,w:225,h:32},
{t:"San Francisco, CA 94143",p:10,x:39,y:790,w:298,h:32},
{t:"Phone: (415) 353-2273",p:10,x:39,y:824,w:270,h:32},
{t:"Fax: (415) 353-2898",p:10,x:39,y:857,w:241,h:32},
{t:"Jeffrey Dunn, M.D.",p:10,x:39,y:924,w:241,h:32},
{t:"Stanford Hospital & Clinics",p:10,x:39,y:957,w:326,h:32},
{t:"300 Pasteur Dr.",p:10,x:39,y:990,w:180,h:32},
{t:"Stanford, CA 94305",p:10,x:39,y:1024,w:234,h:32},
{t:"Phone: (650) 723-6469",p:10,x:39,y:1057,w:270,h:32},
{t:"Fax: (650) 725-0390",p:10,x:39,y:1090,w:241,h:32},
{t:"Benjamin Greenberg, M.D.",p:10,x:39,y:1157,w:340,h:32},
{t:"Univ. of Texas SouthWestern",p:10,x:39,y:1190,w:339,h:32},
{t:"5323 Harry Hines Blvd.",p:10,x:39,y:1224,w:280,h:32},
{t:"Dallas, TX 75023",p:10,x:39,y:1257,w:207,h:32},
{t:"Phone: (214) 645-8800",p:10,x:39,y:1290,w:270,h:32},
{t:"Fax: (214) 645-8801",p:10,x:39,y:1324,w:241,h:32},
{t:"Rock Heyman, M.D.",p:10,x:39,y:1390,w:255,h:32},
{t:"U. of Pittsburgh Medical Ctr.",p:10,x:39,y:1424,w:339,h:32},
{t:"3471 Fifth Avenue",p:10,x:39,y:1457,w:216,h:32},
{t:"Pittsburgh, PA 15213",p:10,x:39,y:1490,w:247,h:32},
{t:"Phone: (412) 692-4920",p:10,x:39,y:1524,w:270,h:32},
{t:"Fax: (412) 692-4907",p:10,x:39,y:1557,w:241,h:32},
{t:"Adil Javed, M.D.",p:10,x:462,y:124,w:211,h:32},
{t:"Univ. of Chicago Medical ",p:10,x:462,y:157,w:309,h:32},
{t:"Center",p:10,x:462,y:190,w:77,h:32},
{t:"5841 S. Maryland Ave.",p:10,x:462,y:224,w:269,h:32},
{t:"Chicago, IL 60637",p:10,x:462,y:257,w:218,h:32},
{t:"Phone: (773) 702-6222",p:10,x:462,y:290,w:270,h:32},
{t:"Fax: (773) 702-9076",p:10,x:462,y:324,w:241,h:32},
{t:"Michael Levy, M.D., Ph.D.",p:10,x:462,y:390,w:329,h:32},
{t:"John Hopkins School of ",p:10,x:462,y:424,w:288,h:32},
{t:"Medicine",p:10,x:462,y:457,w:110,h:32},
{t:"733 N. Broadway",p:10,x:462,y:490,w:206,h:32},
{t:"Baltimore, MD 21205",p:10,x:462,y:524,w:258,h:32},
{t:"Phone: (410) 955-9441",p:10,x:462,y:557,w:270,h:32},
{t:"Fax: (410) 955-9550",p:10,x:462,y:590,w:241,h:32},
{t:"Fred Lublin, M.D.",p:10,x:462,y:657,w:228,h:32},
{t:"Mount Sinai Medical Center",p:10,x:462,y:690,w:332,h:32},
{t:"5 East 98th Street",p:10,x:462,y:724,w:206,h:32},
{t:"New York, NY 10029",p:10,x:462,y:757,w:254,h:32},
{t:"Phone: (212) 241-6854",p:10,x:462,y:790,w:270,h:32},
{t:"Fax: (212) 241-5333",p:10,x:462,y:824,w:241,h:32},
{t:"Claudia Lucchinetti, M.D. ",p:10,x:462,y:890,w:333,h:32},
{t:"Mayo Clinic",p:10,x:462,y:924,w:146,h:32},
{t:"200 First Street NW",p:10,x:462,y:957,w:235,h:32},
{t:"Rochester, MN 55905",p:10,x:462,y:990,w:257,h:32},
{t:"Phone: (507) 538-3270",p:10,x:462,y:1024,w:270,h:32},
{t:"Fax: (507) 284-0161",p:10,x:462,y:1057,w:241,h:32},
{t:"Jayne Ness, M.D., Ph.D.",p:10,x:462,y:1124,w:298,h:32},
{t:"Children's Hospital of ",p:10,x:462,y:1157,w:263,h:32},
{t:"Alabama",p:10,x:462,y:1190,w:105,h:32},
{t:"1719 6th Avenue South",p:10,x:462,y:1224,w:272,h:32},
{t:"Birmingham, AL 35294",p:10,x:462,y:1257,w:278,h:32},
{t:"Phone: (205) 996-7633",p:10,x:462,y:1290,w:270,h:32},
{t:"Fax: (205) 996-7333",p:10,x:462,y:1324,w:241,h:32},
{t:"Mary Ann Picone, M.D.",p:10,x:462,y:1390,w:296,h:32},
{t:"Holy Name Hospital",p:10,x:462,y:1424,w:241,h:32},
{t:"718 Teaneck Road",p:10,x:462,y:1457,w:216,h:32},
{t:"Teaneck, NJ 07666",p:10,x:462,y:1490,w:223,h:32},
{t:"Phone: (201) 837-0727",p:10,x:462,y:1524,w:270,h:32},
{t:"Fax: (201) 837-8504",p:10,x:462,y:1557,w:241,h:32},
{t:"Sean Pittock, M.D.",p:10,x:883,y:124,w:234,h:32},
{t:"Mayo Clinic",p:10,x:883,y:157,w:146,h:32},
{t:"200 First Street NW",p:10,x:883,y:190,w:235,h:32},
{t:"Rochester, MN 55905",p:10,x:883,y:224,w:257,h:32},
{t:"Phone: (507) 538-3270",p:10,x:883,y:257,w:270,h:32},
{t:"Fax: (507) 284-0161",p:10,x:883,y:290,w:241,h:32},
{t:"Jay Rosenberg, M.D.",p:10,x:883,y:357,w:261,h:32},
{t:"Neurology Center ",p:10,x:883,y:390,w:217,h:32},
{t:"3907 Waring Road",p:10,x:883,y:424,w:219,h:32},
{t:"Oceanside, CA 92056",p:10,x:883,y:457,w:255,h:32},
{t:"Phone: (760) 631-3000",p:10,x:883,y:490,w:270,h:32},
{t:"Fax: (760) 631-3016",p:10,x:883,y:524,w:241,h:32},
{t:"Larry Steinman, M.D.",p:10,x:883,y:590,w:277,h:32},
{t:"Stanford Hospital & Clinics",p:10,x:883,y:624,w:326,h:32},
{t:"300 Pasteur Dr.",p:10,x:883,y:657,w:180,h:32},
{t:"Stanford, CA 94305",p:10,x:883,y:690,w:234,h:32},
{t:"Phone: (650) 723-6469",p:10,x:883,y:724,w:270,h:32},
{t:"Fax: (650) 725-0390",p:10,x:883,y:757,w:241,h:32},
{t:"Mark Tullman, M.D.",p:10,x:883,y:824,w:260,h:32},
{t:"Neurological Institute of NY",p:10,x:883,y:857,w:336,h:32},
{t:"710 West 168th Street",p:10,x:883,y:890,w:249,h:32},
{t:"New York, NY 10032",p:10,x:883,y:924,w:254,h:32},
{t:"Phone: (212) 342-8647",p:10,x:883,y:957,w:270,h:32},
{t:"Fax: (212) 342-8527",p:10,x:883,y:990,w:241,h:32},
{t:"Brian Weinshenker, M.D. ",p:10,x:883,y:1057,w:324,h:32},
{t:"Mayo Clinic",p:10,x:883,y:1090,w:146,h:32},
{t:"200 First Street NW",p:10,x:883,y:1124,w:235,h:32},
{t:"Rochester, MN 55905",p:10,x:883,y:1157,w:257,h:32},
{t:"Phone: (507) 538-3270",p:10,x:883,y:1190,w:270,h:32},
{t:"Fax: (507) 284-0161",p:10,x:883,y:1224,w:241,h:32},
{t:"Dean Wingerchuk, M.D.",p:10,x:883,y:1290,w:303,h:32},
{t:"Mayo Clinic",p:10,x:883,y:1324,w:146,h:32},
{t:"13400 E. Shea Blvd.",p:10,x:883,y:1357,w:240,h:32},
{t:"Scottsdale, AZ 85259",p:10,x:883,y:1390,w:251,h:32},
{t:"Phone: (800) 446-2279",p:10,x:883,y:1424,w:270,h:32},
{t:"Fax: (480) 301-7006",p:10,x:883,y:1457,w:241,h:32},
{t:"Clinicians Who Treat NMO in the United States",p:10,x:222,y:36,w:827,h:41},
{t:"10",p:10,x:45,y:1596,w:22,h:26},
{t:"TO:",p:12,x:452,y:1258,w:43,h:28},
{t:"8910 University Center Lane, Suite 725",p:12,x:93,y:1007,w:290,h:21},
{t:"San Diego CA 92122",p:12,x:93,y:1028,w:159,h:21},
{t:"The Guthy-Jackson Charitable Foundation is dedicated to funding basic ",p:12,x:492,y:59,w:665,h:22},
{t:"science research to find answers that will lead to the prevention, clinical ",p:12,x:494,y:87,w:664,h:22},
{t:"treatment programs and a potential cure for Neuromyelitis Optica (NMO) ",p:12,x:495,y:114,w:685,h:22},
{t:"Spectrum Disease.",p:12,x:497,y:141,w:169,h:22},
{t:"The decision to create our Foundation came from a personal family crisis. ",p:12,x:500,y:195,w:680,h:22},
{t:"Our daughter was officially diagnosed with NMO in June 2008. Since that ",p:12,x:501,y:222,w:683,h:22},
{t:"time, we have met with many clinicians and researchers in order to ",p:12,x:502,y:249,w:621,h:22},
{t:"understand what this means for our beautiful daughter and our family. ",p:12,x:504,y:276,w:659,h:22},
{t:"Additionally, we have gathered and read every piece of information and ",p:12,x:505,y:303,w:670,h:22},
{t:"NMO research article that is available on the Web.  We are now beginning ",p:12,x:507,y:330,w:682,h:22},
{t:"to understand that NMO is not only considered an “orphan” disease, but ",p:12,x:508,y:357,w:677,h:22},
{t:"that very little research is available.",p:12,x:509,y:384,w:324,h:22},
{t:"We met with the All Greater Good Foundation in early July 2008 when it ",p:12,x:503,y:439,w:671,h:22},
{t:"became clear that there is little-to-no funding available to research this rare and often misunderstood disease. We ",p:12,x:137,y:466,w:1042,h:22},
{t:"joined hands with the All Greater Good Foundation to immediately begin our work, and thus, The Guthy-Jackson ",p:12,x:137,y:493,w:1052,h:22},
{t:"Charitable Foundation was born.",p:12,x:137,y:520,w:304,h:22},
{t:"The Guthy-Jackson Charitable Foundation is dedicated to funding biomedical research in the search to ",p:12,x:137,y:574,w:947,h:22},
{t:"understand the pathophysiology and biochemistry of NMO Spectrum Disease. It is our greatest hope that together ",p:12,x:137,y:601,w:1059,h:22},
{t:"we will reverse the effects of NMO and eventually cure this disease.",p:12,x:137,y:628,w:623,h:22},
{t:"Sincerely,",p:12,x:137,y:682,w:86,h:22},
{t:"Bill Guthy and Victoria Jackson, Founders",p:12,x:137,y:709,w:386,h:22},
{t:"Photo by MATTHEW ROLSTON",p:12,x:322,y:416,w:157,h:14},
0];
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			 ]