Advocacy for Patients with Chronic Illness, Inc.
Jennifer C. Jaff, Executive Director
18 Timberline Drive
Farmington, CT 06032
Tel: 860-674-1370
Fax: 860-674-1378
Email: patient_advocate@sbcglobal.net Click here to visit website
Mayo Clinic Minnesota - Rochester
200 First St. S.W.
Rochester, MN 55905
Tel: 507-284-2511
Fax: 507-284-0161 Click here to visit website
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
Tel: 954-776-6805 888-MSFOCUS (673-6287)
Fax: 954-351-0630
Email: support@msfocus.org Click here to visit website
The Myelin Project - USA
Candace Root, Executive Director
1400 Wallace Blvd, Sute 258
Amarillo, Texas 79106
Toll Free 800-869-3546
Tel: 806-356-4693
Fax: 806-356-4694
Email: candace.root@myelin.org Click here to visit website
National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Tel: 301-496-5248
Email: 2020@nei.nih.gov Click here to visit website
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100
Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291
Email: orphan@rarediseases.org Click here to visit website
Office of Rare Diseases National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, Maryland 20892-7518
Tel: 301-402-4336
Fax: 301-480-9655
Email: ord@od.nih.gov Click here to visit website
Oxford University Neuromyelitis Optica (NMO) Clinic
Department of Clinical Neurology
John Radcliffe Hospital
Level 3, West Wing
Headington
Oxford OX3 9DU
UK
Tel: 01865 234461
Email:annaliza.rye@orh.nhs.uk Click here to visit website