NMO Support Organizations
Accelerated Cure Project
300 Fifth Avenue
Waltham, MA 02451
Tel: 781-487-0008
Fax: 781-487-0009
Email: info-web0508@acceleratedcure.org
Visit website
Advocacy for Patients with Chronic Illness, Inc.
Jennifer C. Jaff, Executive Director
18 Timberline Drive
Farmington, CT 06032
Tel: 860-674-1370
Fax: 860-674-1378
Email: patient_advocate@sbcglobal.net
Visit website
The Blind Cook
Visit website
Campaign for Better Care
c/o National Partnership
1875 Connecticut Avenue, NW
Suite 650
Washington, DC 20009
Tel: 202-986-2600
Fax: 202-986-2539
Email: info@CampaignforBetterCare.org
Visit website
CoachArt
3303 Wilshire Boulevard
Suite 230
Los Angeles, CA 90010
Tel: 213-736-2850
Fax: 213-736-2851
Visit website
Devic’s Disease Blogspot
Visit website
Devic’s Disease Facebook
Visit website
Devic’s Support Group
Visit website
Mayo Clinic
Minnesota – Rochester
200 First St. S.W.
Rochester, MN 55905
Tel: 507-284-2511
Fax: 507-284-0161
Visit website
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
Tel: 954-776-6805 888-MSFOCUS (673-6287)
Fax: 954-351-0630
Email: support@msfocus.org
Visit website
Multiple Sclerosis Trust
Neuromyelitis optica in the UK: a new service
Jon Revis, NMO Nurse Specialist
John Radcliffe Hospital, Oxford
The Myelin Project – USA
Candace Root, Executive Director
1400 Wallace Blvd, Sute 258
Amarillo, Texas 79106
Toll Free 800-869-3546
Tel: 806-356-4693
Fax: 806-356-4694
Email: candace.root@myelin.org
Visit website
Myelin Repair Foundation
18809 Cox Avenue
Suite 190
Saratoga, CA 95070
Tel: 408-871-2410 Fax: 408-871-2409
Email: info@myelinrepair.org
Visit website
National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Tel: 301-496-5248
Email: 2020@nei.nih.gov
Visit website
National Institute of Neurological Disorders and Stroke(NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: 800-352-9424
Email: braininfo@ninds.nih.gov
Visit website
National Organization for Rare
Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100
Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291
Email: orphan@rarediseases.org
Visit website
NMO Diaries
Visit website
Office of Rare Diseases National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, Maryland 20892-7518
Tel: 301-402-4336
Fax: 301-480-9655
Email: ord@od.nih.gov
Visit website
Neuromyelitis Optica UK Specialised Services
Lower Lane
Fazakerley
Liverpool L9 7LJ
Tel: 0151 529 8357
Fax: 0151-529-2027
Email: nmo.advice@thewaltoncentre.nhs.uk
Visit website
Oxford University NMO Clinic Department of Clinical Neurology
John Radcliffe Hospital
Level 3, West Wing
Headington
Oxford OX3 9DU
UK
Tel: 01865 234461
Email:annaliza.rye@orh.nhs.uk
Visit website
PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141
Email: support@patientslikeme.com
Visit website
Pediatric NMO and Demyelinating Diseases Facebook Page
Visit website
Purling Dervish
SistaMoon Foundation for Devic’s Disease
Shelia Sheckles, Founder and CEO
Email: sistamoonfoundation@yahoo.com
Visit website
Transverse Myelitis Association
Sanford J. Siegel
President & Newsletter Editor
1787 Sutter Parkway
Powell, OH 43065-8806
Email: ssiegel@myelitis.org
Visit the TMA website
Visit the TMA Facebook
Visit the TMA Twitter
The Walton Centre for Neurology and Neurosurgery
NHS Trust
Lower Lane
Fazakerley
Liverpool
L9 7LJ
Tel: +0151 – 525 3611
Email: enquiries@thewaltoncentre.nhs.uk
Visit website