NMO Video Library
Featured Videos
Imagine being struck by a crippling, debilitating disease?and then being misdiagnosed. 16×9 speaks to patients of a life threatening disease called NMO.
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Victoria Jackson shares her quest for a cure with My Generation host Leeza Gibbons, revealing that the disease is no match for a mother’s love.
An inside look at what goes on behind the scenes at The Guthy-Jackson Charitable Foundation.
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Within the NMO community, The Guthy-Jackson Charitable Foundation’s NMO Patient Day is said to be one of the highlights of the year for those living with this rare orphan disease.
The Guthy-Jackson Charitable Foundation goes on the road for NMO. Our Repository Study Nurse travels anywhere within the continental United States to collect blood samples from NMO patients and family.
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Overview
Neuromyelitis optica
(NMO) spectrum disease
is a rare autoimmune disease.
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NMO patients describe what it’s like living with NMO and how the Foundation helps.
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NMO spectrum disease doesn’t only affect patients, it affects families and friends.
Actress Kathy Najimy interviews GJCF Founder, Victoria Jackson about her daughter’s journey…
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Victoria Jackson talks to actor Kathy Najimy about The Guthy-Jackson Charitable Foundation.
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Victoria Jackson talks to Kathy Najimy about the role of The Guthy-Jackson Charitable Foundation.
Actress Kathy Najimy
interviews GJCF Founder, Victoria Jackson about her
daughter’s journey…
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GJCF works to create a scientific research model that will ultimately cure patients with NMO…
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Questions about NMO
Neuromyelitis optica
(NMO) spectrum
disease is a rare
autoimmune disease.
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GJCF works to create a scientific research model that will ultimately cure patients with NMO.
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People living with NMO often appear to have similar symptoms as those who have MS.
Scientists are researching many forms of treatments for people living with NMO…
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NMO treatment approvals and costs pose a challenge for today’s US healthcare system.
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Peoples’ bodies are
unique and can react
differently to any form
of therapeutic treatments.
Two major groups can categorize people living with NMO: monophasic and relapsing.
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The current drug
treatments for NMO
have been gathered
from a rather small …
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There are many things that we do not understand
about NMO
The current drug
treatments for NMO
have been gathered
from a rather small…
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Dr. Brian Weinshenker,
a clinician at the Mayo
Clinic, describes optic neuritis (ON)…
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People living with NMO can experience neurogenic pain, but there are treatments available.
Patients’ Stories
Collin’s story is about a courageous young boy and his family who have
stopped at nothing…
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Neuromyelitis optica (NMO) affects people from all over the world.
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Foundation Events
The Third annual NMO Patient Session brought people affected by NMO together…
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The Second annual NMO Patient Session brought people affected by NMO together…
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The First annual NMO Patient Session brought people affected by NMO together…
Bringing together NMO scientists and clinicians to share information.
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Public Awareness
Victoria Jackson talks to Tina Brown about ways she’s made a difference
in women’s lives.
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GJCF speaks to the CIRM governing board to raise awareness for NMO.
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Victoria Jackson and her daughter Ali Guthy Champions of Courage
Jenna promotes NMO awareness with the Guthy-Jackson Foundation at the Consortium for MS Centers in Montreal.
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The hope is that these funding approaches will accelerate the discovery of cures through more efficient collaboration.
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