NMO Video Library

NMO Video Library

Featured Videos

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Neuromyelitis Optica and Autoimmune Diseases

Can solving one rare autoimmune disease unlock the door to solving all autoimmune diseases? NMO may hold the key.

Ali Guthy and The Guthy-Jackson Charitable Foundation

Ali Guthy discusses NMO, The Guthy-Jackson Charitable Foundation and the future of autoimmune diseases.

How Do Clinical Trials Work?

Clinical trial information for NMO patients.

NMOtion - Be the Cure

NMOtion, a patient gateway to
solve NMO.

NMO Tolerization

NMO doctors and researchers discuss tolerization and autoimmune diseases such as NMO.

A Path to Progress

Victoria Jackson, Ali Guthy and clinicians discuss the progress made in the fight against NMO (Neuromyelitis Optica).

Victoria Jackson and Ali Guthy on Ellen

Victoria Jackson and Ali Guthy Appear on Ellen to discuss NMO and Saving Each Other.

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Victoria Jackson and Ali Guthy Appear on Marie

Victoria Jackson and Ali Guthy Appear on Hallmark’s Marie to discuss NMO and Saving Each Other.

How Do We See in the Dark?

Inspirational video about the progress and future of NMO.

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Pioneering a New Scientific Research Model

Neuromyelitis optica (NMO) spectrum disease is a rare autoimmune disease.

Living with NMO

NMO patients describe what it’s like living with NMO and how the Foundation helps.

Mom on a Mission

NMO spectrum disease doesn’t only
affect patients, it affects families and friends.

Living with NMO

GJCF works to create a scientific research model that will ultimately cure patients with NMO.

Living with NMO

The Guthy-Jackson Charitable Foundation’s progress and future in the mission to solve NMO.


 

Questions about NMO

Questions About NMO Videos

Can Tissues injured by NMO be repaired (Regeneration/Remyelination)?

Neuromyelitis Optica can injure tissues, the question then becomes “can they be repaired”.

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Currently how is NMO/NMOSD best diagnosed?

The diagnosis of NMO can be difficult, Dr. Sean Pittock breaks down how it is best diagnosed.

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Do NMO treatments have dangerous side effects?

Side effects of treatments for NMO can vary depending on several factors.

Does spinal cord damage occur in NMO?

Spinal cord damage and NMO.

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Does the weather-environment affect NMO?

Weather plays a role in everyone’s lives, for NMO patients it could possibly play a larger one.

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How are genetics involved in NMO?

In general NMO is not a genetic condition, Dr. Ben Greenberg explains.

How Broken is my immune system if I have NMO?

Many NMO patients become concerned about their immune system and whether or not it is “broken”.

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How common is NMO?

Dr. Dean Wingerchuk explains how rare NMO is.

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How do Clinicians treat NMO?

There are different types of therapy for NMO, clinicians treat attacks, relapses and symptoms.

How do I request the NMO IgG Antibody Test?

Dr. Maureen Mealy discusses what is needed to request the NMO IgG Antibody Test

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How does clinical research benefit solving NMO?

The benefits of clinical research broken down by Dr. Larry Steinman.

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How Frequent are NMO Relapses?

The frequency of NMO relapses can vary patient to patient.

How important is it to participate in a clinical trial?

Clinical trials are important as they lead to new drugs and therapies to NMO patients.

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How is the NMO IgG Antibody detected?

Dr. Sean Pittock describes the history of the NMO IgG antibody and how it’s detected.

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How is transverse myelitis involved in NMO?

NMO can cause Transverse Myelitis, but not all patients with transverse myelitis have NMO.

Is NMO a form of Multiple Sclerosis (MS)?

Recent discoveries indicate that NMO and MS are distinct diseases.

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Is there a relationship between vaccinations and NMO?

Dr. Ben Greenberg discusses whether or not there is a link between NMO and vaccines.

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Should I continue to get vaccinations if I'm on immunosuppressive therapy?

Dr. Jeffrey Bennett discusses vaccinations for patients on immunosuppressive therapy.

What are B cells and why are they important in NMO?

The relationship between B cells and NMO.

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What are T cells and why are they important to NMO?

The relationship between T cells and NMO.

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What are typical NMO symptoms in children?

Dr. Brenda Banwell explains the typical symptoms in children and adults.

What are typical NMO Symptoms?

Symptoms of NMO are symptoms that primarily affect the optic nerve and spinal cord.

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What do I need to know if I am thinking about participating in a clinical trial?

There are several important factors patients need to consider before joining a clinical trial.

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What is the main role for a primary care physician treating NMO?

A primary care physician’s role alongside, a local neurologist and an NMO specialist.

What should a primary care physician know when treating NMO?

Primary care physicians knowledge of NMO can vary because of the rarity of the disease.

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What should patients know if taking immunosuppressive therapy?

Dr. James Bowen breaks down what should be expected when taking immunosuppressive therapy.

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Why do we need clinical trials in NMO?

Clinical trials in NMO help gather better evidence for existing and new therapies towards curing NMO.

What Causes NMO

Neuromyelitis optica
(NMO) spectrum
disease is a rare
autoimmune disease.

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How does NMO Differ from MS

GJCF works to create a scientific research model that will ultimately cure patients with NMO.

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Why is it Important to Distinguish NMO from MS

People living with NMO often appear to have similar symptoms as those who have MS.

Will Embryonic Stem Cell Treatments Help NMO Patients

Scientists are researching many forms of treatments for people living with NMO…

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Insurance and Rare Diseases

NMO treatment approvals and costs pose a challenge for today’s US healthcare system.

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Why do Patients Recover Differently From Attacks

Peoples’ bodies are
unique and can react
differently to any form
of therapeutic treatments.

What is the Difference Between Monophasic and Relapsing NMO

Two major groups can categorize people living with NMO: monophasic and relapsing.

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Most Effective Drug Treatments

The current drug
treatments for NMO
have been gathered
from a rather small …

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NMO Patients and Other Autoimmune Diseases

There are many things that we do not understand
about NMO

Are We Close to a Cure

The current drug
treatments for NMO
have been gathered
from a rather small…

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What is Optic Neuritis

Dr. Brian Weinshenker,
a clinician at the Mayo
Clinic, describes optic neuritis (ON)…

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What is neurogenic pain

People living with NMO can experience neurogenic pain, but there are treatments available.

 

 

 

Clinical Trials
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Alexion Pharmaceuticals: NMO Clinical Trial Update Podcast

Alexion Pharmaceuticals podcast from GJCF’s “NMO Clinical Trial Update”.

Ali Guthy Story

Chugai Pharmaceuticals podcast from GJCF’s “NMO Clinical Trial Update”.

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The Foundation

MedImmune podcast from GJCF’s “NMO Clinical Trial Update”.

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How do Clinical Trials Work

Clinical trial information for NMO patients.

 

 

 

Foundation Interviews
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Power of a Mother’s Love

Victoria Jackson
shares her quest for a
cure with Leeza Gibbons.

Ali Guthy Story

Actress Kathy Najimy interviews GJCF Founder, Victoria Jackson about her daughter’s journey…

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The Foundation

Victoria Jackson talks to actor Kathy Najimy about The Guthy-Jackson Charitable Foundation.

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Hope

Victoria Jackson talks to Kathy Najimy about the role of The Guthy-Jackson Charitable Foundation.

Kathy Najimy Interview

Actress Kathy Najimy
interviews GJCF Founder, Victoria Jackson about her
daughter’s journey…


 

Foundation Events

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NMO Patient Day 2013

The Fifth annual NMO Patient Session brought people affected by NMO together…

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NMO Patient Day 2012

The Fourth annual NMO Patient Session brought people affected by NMO together…

 

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NMO Patient Day 2011

The Third annual NMO Patient Session brought people affected by NMO together…

NMO Patient Day 2010

The Second annual NMO Patient Session brought people affected by NMO together…

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NMO Patient Day 2009

The First annual NMO Patient Session brought people affected by NMO together…

 

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NMO Roundtable Conference 2009

Bringing together NMO scientists and clinicians to share information.


 

Public Awareness and Patient Stories

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How to Make a Difference

Victoria Jackson talks to Tina Brown about ways she’s made a difference
in women’s lives.

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NMO Advocacy

GJCF speaks to the CIRM governing board to raise awareness for NMO.

 

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Evening of Champions

Victoria Jackson and her daughter Ali Guthy Champions of Courage

Consortium for MS Centers - Montreal 2011

Jenna promotes NMO awareness with the Guthy-Jackson Foundation at the Consortium for MS Centers in Montreal.

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CIRM: Cures through Collaboration

The hope is that these funding approaches will accelerate the discovery of cures through more efficient collaboration.

 

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Dr. Brian Weinshenker Talks About NMO

A talk with Dr Brian Weinshenker, Professor of Neurology and researcher at the Mayo Clinic.

Dangers in Diagnosis

Imagine being struck by a crippling, debilitating disease and then being misdiagnosed.

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Collin McDaniel Story

Collin’s story is about a courageous young boy and his family who have
stopped at nothing…

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Candace Coffee

Neuromyelitis optica (NMO) affects people from all over the world.

Dangers in Diagnosis

Mystery ER: ‘Scared Stiff’ covers the mystery behind a diagnosis of Neuromyelitis Optica.

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